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Frequency of reporting on patient and public involvement (PPI) in research studies published in a general medical journal : a descriptive study
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Price, Amy, Schroter, Sara, Snow, Rosamund, Hicks, Melissa, Harmston, Rebecca, Staniszewska, Sophie, Parker, Sam and Richards, Tessa (2018) Frequency of reporting on patient and public involvement (PPI) in research studies published in a general medical journal : a descriptive study. BMJ Open, 8 (3). e020452. doi:10.1136/bmjopen-2017-020452 ISSN 2044-6055.
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Official URL: http://doi.org/10.1136/bmjopen-2017-020452
Abstract
Objectives
While documented plans for patient and public involvement (PPI) in research are required in many grant applications, little is known about how frequently PPI occurs in practice. Low levels of reported PPI may mask actual activity due to limited PPI reporting requirements. This research analysed the frequency and types of reported PPI in the presence and absence of a journal requirement to include this information.
Design and setting
A before and after comparison of PPI reported in research papers published in The BMJ before and 1 year after the introduction of a journal policy requiring authors to report if and how they involved patients and the public within their papers.
Results
Between 1 June 2013 and 31 May 2014, The BMJ published 189 research papers and 1 (0.5%) reported PPI activity. From 1 June 2015 to 31 May 2016, following the introduction of the policy, The BMJ published 152 research papers of which 16 (11%) reported PPI activity. Patients contributed to grant applications in addition to designing studies through to coauthorship and participation in study dissemination. Patient contributors were often not fully acknowledged; 6 of 17 (35%) papers acknowledged their contributions and 2 (12%) included them as coauthors.
Conclusions
Infrequent reporting of PPI activity does not appear to be purely due to a failure of documentation. Reporting of PPI activity increased after the introduction of The BMJ ’s policy, but activity both before and after was low and reporting was inconsistent in quality. Journals, funders and research institutions should collaborate to move us from the current situation where PPI is an optional extra to one where PPI is fully embedded in practice throughout the research process.
| Item Type: | Journal Article | ||||||
|---|---|---|---|---|---|---|---|
| Subjects: | R Medicine > R Medicine (General) | ||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| SWORD Depositor: | Library Publications Router | ||||||
| Library of Congress Subject Headings (LCSH): | Medicine -- Research grants, Patients | ||||||
| Journal or Publication Title: | BMJ Open | ||||||
| Publisher: | BMJ | ||||||
| ISSN: | 2044-6055 | ||||||
| Official Date: | 23 March 2018 | ||||||
| Dates: |
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| Volume: | 8 | ||||||
| Number: | 3 | ||||||
| Article Number: | e020452 | ||||||
| DOI: | 10.1136/bmjopen-2017-020452 | ||||||
| Status: | Peer Reviewed | ||||||
| Publication Status: | Published | ||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||
| Date of first compliant deposit: | 11 May 2018 | ||||||
| Date of first compliant Open Access: | 11 May 2018 |
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