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Quality and acceptability of patient-reported outcome measures used to assess fatigue in axial spondyloarthritis (axSpA) : a systematic review (protocol)
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Pearson, Nathan, Packham, Jonathan C., Parsons, Helen and Haywood, Kirstie L. (2018) Quality and acceptability of patient-reported outcome measures used to assess fatigue in axial spondyloarthritis (axSpA) : a systematic review (protocol). Systematic Reviews, 7 (1). 116. doi:10.1186/s13643-018-0777-7 ISSN 2046-4053.
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Official URL: http://dx.doi.org/10.1186/s13643-018-0777-7
Abstract
Background:
The prevalence of axial spondyloarthritis (axSpA) is estimated between 0.15 and 1.2%, with many of those patients experiencing severe fatigue. Current axSpA assessment guidance recommends use of a single-item visual analogue scale for fatigue severity. However, concerns have been raised about the ability of such a limited assessment to identify patients with major fatigue, to detect important change in fatigue or to reflect the multi-dimensional nature of fatigue. The proposed systematic review will identify and evaluate the quality and acceptability of single- and multi-item patient-reported outcome measures (PROMs) used to assess fatigue in axSpA, seeking to make recommendations for the 'best' measures for research and/or clinical practice.
Methods/design:
The review will seek to include published studies which report evidence of the development and/or measurement and/or practical properties of clearly defined and reproducible measures of fatigue following completion by patients with axSpA. Five major databases will be searched from 1980 to August 2017: MEDLINE (OVID), EMBASE (OVID), PsycINFO (OVID), World of Science and CINAHL. Study methodological quality will be assessed against the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist. The measurement and/or practical properties of reviewed measures will be assessed against current international standards. A short list of the 'best'-quality PROMs will be produced. The review will be reported in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines.
Discussion:
This study will provide the first robust and transparent evaluation of patient-reported measures of fatigue used in the axSpA population, synthesising evidence of quality, relevance and acceptability. The review will benefit patients, clinicians, health professionals and researchers wishing to enhance axSpA-fatigue assessment in routine practice, service evaluation and research. The findings will impact future research which seeks to better understand the nature of axSpA fatigue and evaluate the relative benefit of fatigue-management strategies.
Systematic review registration:
PROSPERO CRD42016042271
| Item Type: | Journal Article | ||||||||
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| Subjects: | R Medicine > R Medicine (General) | ||||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Clinical Trials Unit Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| SWORD Depositor: | Library Publications Router | ||||||||
| Library of Congress Subject Headings (LCSH): | Spondyloarthropathies, Ankylosing spondylitis, Fatigue, Outcome assessment (Medical care), Patient participation | ||||||||
| Journal or Publication Title: | Systematic Reviews | ||||||||
| Publisher: | BioMed Central Ltd. | ||||||||
| ISSN: | 2046-4053 | ||||||||
| Official Date: | 7 August 2018 | ||||||||
| Dates: |
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| Volume: | 7 | ||||||||
| Number: | 1 | ||||||||
| Article Number: | 116 | ||||||||
| DOI: | 10.1186/s13643-018-0777-7 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Reuse Statement (publisher, data, author rights): | ** From PubMed via Jisc Publications Router. ** History: received 06-02-2017; accepted 17-07-2018. | ||||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||||
| Copyright Holders: | The Author(s) | ||||||||
| Date of first compliant deposit: | 28 August 2018 | ||||||||
| Date of first compliant Open Access: | 28 August 2018 | ||||||||
| RIOXX Funder/Project Grant: |
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