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Balancing information governance obligations when accessing social care data for collaborative research
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Thiarai, Malkiat, Chotvijit, Sarunkorn and Jarvis, Stephen A. (2019) Balancing information governance obligations when accessing social care data for collaborative research. Records Management Journal, 29 (1/2). pp. 194-209. doi:10.1108/RMJ-09-2018-0029
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Official URL: https://doi.org/10.1108/RMJ-09-2018-0029
Abstract
Purpose
There is significant national interest in tackling issues surrounding the needs of vulnerable children and adults. This paper aims to argue that much value can be gained from the application of new data-analytic approaches to assist with the care provided to vulnerable children. This paper highlights the ethical and information governance issues raised in the development of a research project that sought to access and analyse children’s social care data.
Design/methodology/approach
The paper documents the process involved in identifying, accessing and using data held in Birmingham City Council’s social care system for collaborative research with a partner organisation. This includes identifying the data, its structure and format; understanding the Data Protection Act 1998 and 2018 (DPA) exemptions that are relevant to ensure that legal obligations are met; data security and access management; the ethical and governance approval process.
Findings
The findings will include approaches to understanding the data, its structure and accessibility tasks involved in addressing ethical and legal obligations and requirements of the ethical and governance processes.
Originality/value
The aim of this research is to highlight the potential use of use new data-analytic techniques to examine the flow of children’s social care data from referral, through the assessment process, to the resulting service provision. Data held by Birmingham City Council are used throughout, and this paper highlights key ethical and information governance issues which were addressed in preparing and conducting the research. The findings provide insight for other data-led studies of a similar nature.
Item Type: | Journal Article | |||||||||||||||
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Subjects: | H Social Sciences > HQ The family. Marriage. Woman | |||||||||||||||
Divisions: | Faculty of Science, Engineering and Medicine > Science > Computer Science | |||||||||||||||
Library of Congress Subject Headings (LCSH): | Child care services -- Birmingham (England), Children -- Services for -- Birmingham (England), Social sciences -- Moral and ethical aspects -- Research | |||||||||||||||
Journal or Publication Title: | Records Management Journal | |||||||||||||||
Publisher: | Emerald Insight | |||||||||||||||
Official Date: | 26 February 2019 | |||||||||||||||
Dates: |
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Volume: | 29 | |||||||||||||||
Number: | 1/2 | |||||||||||||||
Page Range: | pp. 194-209 | |||||||||||||||
DOI: | 10.1108/RMJ-09-2018-0029 | |||||||||||||||
Status: | Peer Reviewed | |||||||||||||||
Publication Status: | Published | |||||||||||||||
Access rights to Published version: | Open Access (Creative Commons) | |||||||||||||||
Date of first compliant deposit: | 8 March 2019 | |||||||||||||||
Date of first compliant Open Access: | 13 March 2019 | |||||||||||||||
RIOXX Funder/Project Grant: |
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