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‘About sixty percent I want to do it’. Health researchers’ attitudes to, and experiences of, patient and public involvement (PPI) : a qualitative interview study
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Boylan, Anne-Marie, Locock, Louise, Thompson, Richard and Staniszewska, Sophie (2019) ‘About sixty percent I want to do it’. Health researchers’ attitudes to, and experiences of, patient and public involvement (PPI) : a qualitative interview study. Health Expectations, 22 (4). pp. 721-730. doi:10.1111/hex.12883
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Official URL: https://doi.org/10.1111/hex.12883
Abstract
Background
Funders, policy-makers and research organisations increasingly expect health researchers in the UK to involve patients and members of the public in research. It has been stated that it makes research ‘more effective, more credible and often more cost efficient’. However, the evidence base for this assertion is evolving and can be limited. There has been little research into how health researchers feel about involving people, how they go about it, how they manage formal policy rhetoric and what happens in practice.
Objective
To explore researchers’ experiences and perceptions of patient and public involvement (PPI).
Methods
Semi-structured interview study of 36 health researchers (both clinical and non-clinical), with data collection and thematic analysis informed by the theoretical domains framework.
Results
In the course of our analysis, we developed four themes that encapsulate the participants’ experiences and perceptions of PPI. Participants expressed ambivalence, cynicism and enthusiasm about PPI, an activity that creates emotional labour, which is both rewarding and burdensome and requires practical and social support. It is operationalised in an academic context influenced by power and incentives.
Discussion and conclusions
Researchers’ experiences and attitudes towards patient and public involvement are a key factor in the successful embedding of involvement within the wider research culture. We call for a culture change that supports the development of effective organisational approach to support involvement.
| Item Type: | Journal Article | ||||||||
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| Subjects: | R Medicine > RA Public aspects of medicine | ||||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School | ||||||||
| Library of Congress Subject Headings (LCSH): | Public health -- Citizen participation, Public health administration -- Research | ||||||||
| Journal or Publication Title: | Health Expectations | ||||||||
| Publisher: | Blackwell | ||||||||
| ISSN: | 1369-6513 | ||||||||
| Official Date: | August 2019 | ||||||||
| Dates: |
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| Volume: | 22 | ||||||||
| Number: | 4 | ||||||||
| Page Range: | pp. 721-730 | ||||||||
| DOI: | 10.1111/hex.12883 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access | ||||||||
| RIOXX Funder/Project Grant: |
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