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Seeking help for first-episode psychosis : a family narrative

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Connor, Charlotte, Greenfield, Sheila, Lester, Helen, Channa, Sunita, Palmer, Colin, Barker, Clare, Lavis, Anna and Birchwood, Max (2014) Seeking help for first-episode psychosis : a family narrative. Early Intervention in Psychiatry, 10 (4). pp. 334-345. doi:10.1111/eip.12177 ISSN 1751-7885.

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Official URL: http://dx.doi.org/10.1111/eip.12177

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Abstract

Aim:
Delayed help‐seeking can have serious consequences for young people with first‐episode psychosis (FEP), in terms of treatment response and outcome. Young people's narratives about help‐seeking are important to understand why delays occur; however, as the majority of help‐seeking is initiated by family members, through a general practitioner (GP), family narratives are also of interest. The aim of this study was to explore help‐seeking for FEP, including first contact with a GP.

Method:
A semistructured interview was developed using a topic guide. Framework analysis was used to analyse data and a deductive qualitative method for applied research. The study was set in Birmingham, UK. Participants were interviewed separately by researchers. Joint coding and identification of 14 complete family dyads was then explored for emerging patterns within the family context.

Results:
Family responses to FEP that had an impact on help‐seeking behaviour included withdrawal, normalization, stigma, fear and guilt; poor knowledge of availability, and means of access to mental health services was also important. Help‐seeking was usually instigated by a family member through a GP, although this was not the case for two of our families, and while contact with GP was generally described as a positive experience for several families, it was hindered by poor communication and lack of engagement.

Conclusion:
Families play a key role in facilitating help‐seeking for FEP, but attempts are often derailed by complex family responses to illness. Public mental health interventions should focus on increasing community awareness of psychosis and improving access and alternative routes to mental health services. However, improvements will have little impact unless primary care and other help‐seeking sources engage in open and easy dialogue with the families and young people trying to access their specialist services.

Item Type: Journal Article
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Mental Health and Wellbeing
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Journal or Publication Title: Early Intervention in Psychiatry
Publisher: Wiley-Blackwell Publishing Ltd.
ISSN: 1751-7885
Official Date: 9 October 2014
Dates:
DateEvent
9 October 2014Published
22 June 2014Accepted
Volume: 10
Number: 4
Page Range: pp. 334-345
DOI: 10.1111/eip.12177
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access

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