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The prevalence of mild-to-moderate distress in patients with end-stage renal disease : results from a patient survey using the emotion thermometers in four hospital Trusts in the West Midlands, UK
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Damery, Sarah, Taylor, Celia A., Sein, Kim, Nicholas, Johann, Baharani, Jyoti and Combes, Gill (2019) The prevalence of mild-to-moderate distress in patients with end-stage renal disease : results from a patient survey using the emotion thermometers in four hospital Trusts in the West Midlands, UK. BMJ Open, 9 (5). e027982. doi:10.1136/bmjopen-2018-027982 ISSN 2044-6055.
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WRAP-prevalence-mild-to-moderate-distress-patients-end-stage-renal-disease-Brown-2019.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons Attribution 4.0. Download (307Kb) | Preview |
Official URL: http://dx.doi.org/10.1136/bmjopen-2018-027982
Abstract
Objectives
To assess the prevalence of mild-to-moderate distress in patients with end-stage renal disease (ESRD) and determine the association between distress and patient characteristics.
Design
Cross-sectional survey using emotion thermometer and distress thermometer problem list.
Setting
Renal units in four hospital Trusts in the West Midlands, UK.
Participants
Adult patients with stage 5 chronic kidney disease who were: (1) On prerenal replacement therapy. (2) On dialysis for less than 2 years. (3) On dialysis for 2 years or more (4) With a functioning transplant.
Outcomes
The prevalence of mild-to-moderate distress, and the incidence of distress thermometer problems and patient support needs.
Results
In total, 1040/3730 surveys were returned (27.9%). A third of survey respondents met the criteria for mild-to-moderate distress (n=346; 33.3%). Prevalence was highest in patients on dialysis for 2 years or more (n=109/300; 36.3%) and lowest in transplant patients (n=118/404; 29.2%). Prevalence was significantly higher in younger versus older patients (χ2=14.33; p=0.0008), in women versus men (χ2=6.63; p=0.01) and in black and minority ethnic patients versus patients of white ethnicity (χ2=10.36; p=0.013). Over 40% of patients (n=141) reported needing support. More than 95% of patients reported physical problems and 91.9% reported at least one emotional problem.
Conclusions
Mild-to-moderate distress is common in patients with ESRD, and there may be substantial unmet support needs. Regular screening could help identify patients whose distress may otherwise remain undetected. Further research into differences in distress prevalence over time and at specific transitional points across the renal disease pathway is needed, as is work to determine how best to support patients requiring help.
| Item Type: | Journal Article | ||||||
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| Subjects: | R Medicine > RC Internal medicine | ||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Population, Evidence & Technologies (PET) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Kidneys -- Diseases -- Patients -- West Midlands (England) | ||||||
| Journal or Publication Title: | BMJ Open | ||||||
| Publisher: | BMJ | ||||||
| ISSN: | 2044-6055 | ||||||
| Official Date: | 15 May 2019 | ||||||
| Dates: |
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| Volume: | 9 | ||||||
| Number: | 5 | ||||||
| Article Number: | e027982 | ||||||
| DOI: | 10.1136/bmjopen-2018-027982 | ||||||
| Status: | Peer Reviewed | ||||||
| Publication Status: | Published | ||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||
| Date of first compliant deposit: | 21 May 2019 | ||||||
| Date of first compliant Open Access: | 22 May 2019 | ||||||
| RIOXX Funder/Project Grant: |
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