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Beyond standard rehabilitation programs : working with people with MS for adequate goal setting and rehabilitation treatment evaluation

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Playford, E. Diane (2019) Beyond standard rehabilitation programs : working with people with MS for adequate goal setting and rehabilitation treatment evaluation. Multiple Sclerosis Journal, 25 (10). pp. 1394-1401. doi:10.1177/1352458519864930 ISSN 1352-4585.

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Official URL: https://doi.org/10.1177/1352458519864930

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Abstract

Shared decision-making occurs when the decision is ‘preference sensitive’. It consists of identifying the different treatment options (choice talk), considering the advantages and disadvantages of each option (option talk), and then supporting making the decision in the light of an individual’s experiences and values (decision talk). It is most effective when working with an ‘activated patient’, that is, one who is prepared for the shared decision-making role. In rehabilitation, many decisions are preference sensitive. These decisions may be framed as ‘goal setting’. Skilled clinicians can support patients to learn goal setting skills until the person has the skills to maintain health supporting behaviours most of the time, only seeing a clinical team at times of change or crisis. The steps in goal setting can be summarised as building empathy, creating a contract, identifying priorities, summarising the conversation, articulating the goal, defining actions, building coping plans, and then reviewing progress. Working with people with MS can extend beyond working with individuals to a consideration of what people with MS want from services. This can result in the co-production and co-design of services, as well as the identification of research priorities as exemplified by the James Lind Alliance.

Item Type: Journal Article
Subjects: R Medicine > RC Internal medicine
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH)
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Multiple sclerosis -- Rehabilitation, Multiple sclerosis -- Treatment
Journal or Publication Title: Multiple Sclerosis Journal
Publisher: Sage Publications Ltd.
ISSN: 1352-4585
Official Date: 1 September 2019
Dates:
DateEvent
1 September 2019Published
30 August 2019Available
4 June 2019Accepted
Volume: 25
Number: 10
Page Range: pp. 1394-1401
DOI: 10.1177/1352458519864930
Status: Peer Reviewed
Publication Status: Published
Reuse Statement (publisher, data, author rights): Posted ahead of print. Playford, E. Diane (2019) Beyond standard rehabilitation programs : working with people with MS for adequate goal setting and rehabilitation treatment evaluation. Multiple Sclerosis Journal. Copyright © 2018 The Author. Reprinted by permission of SAGE Publications. DOI: [DOI]
Access rights to Published version: Open Access (Creative Commons)
Date of first compliant deposit: 19 June 2019
Date of first compliant Open Access: 26 June 2019
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