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A patient engagement or information overload : patient and physician views on sharing the medical record in the acute setting

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Fritz, Z., Schlindwein, A. S. and Slowther, Anne (2019) A patient engagement or information overload : patient and physician views on sharing the medical record in the acute setting. Clinical Medicine Journal, 19 (5). pp. 386-391. doi:10.7861/clinmed.2019-0079 ISSN 1470-2118.

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Official URL: https://doi.org/10.7861/clinmed.2019-0079

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Abstract

Background: Patient and professional views about the impact of providing full real-time access to the medical record in the in-hospital setting are unknown.

Methods: Likert-scale and free-text validated questionnaire survey of physicians and patients from acute medical units in two hospitals. The questionnaire explored recent experiences; views on the formation of trust, and views on sharing either the entire medical record or a summary.

Results: Two-hundred and forty-eight patient questionnaires (62% response rate) and 32 physician questionnaires (21% response rate) were returned. Twenty-seven per cent of patients did not recall being told their diagnosis. Doctors and patients differed on what practices that they believed built trust.

Eighty-one per cent of patients supported the idea of having access to the full medical record (for empowerment; the right to information about oneself; as an aide-memoire for discussion). Doctors feared it might provoke anxiety and change the nature of what was written. A written lay summary record was preferred by doctors and patients.

Conclusions: The current system of providing information verbally to patients is inadequate. Patients want more information and are less concerned than physicians about potential negative effects of real-time access to their records. Patient access to medical records (in both full and summary forms) should be evaluated.

Item Type: Journal Article
Subjects: R Medicine > RA Public aspects of medicine
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH)
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Patients -- Attitudes, Medical records, Physician and patient -- Great Britain, Physicians -- Attitudes
Journal or Publication Title: Clinical Medicine Journal
Publisher: Royal College of Physicians
ISSN: 1470-2118
Official Date: 17 September 2019
Dates:
DateEvent
17 September 2019Published
2 June 2019Accepted
Volume: 19
Number: 5
Page Range: pp. 386-391
DOI: 10.7861/clinmed.2019-0079
Status: Peer Reviewed
Publication Status: Published
Reuse Statement (publisher, data, author rights): © Clinical Medicine, 2019. The definitive, peer-reviewed and edited version of this article is published in Clin Med 2019;19-09-17.
Access rights to Published version: Restricted or Subscription Access
Copyright Holders: © 2019 Royal College of Physicians
Date of first compliant deposit: 27 June 2019
Date of first compliant Open Access: 17 September 2020
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