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Lost voices in research : exposing the gaps in the Mental Capacity Act 2005
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Heywood, Rob, Ryan, Hayley, Killett, Anne, Langdon, Peter, Plenderleith, Yvonne, Shiggins, Ciara and Bunning, Karen (2019) Lost voices in research : exposing the gaps in the Mental Capacity Act 2005. Medical Law International, 19 (2-3). pp. 81-112. doi:10.1177/0968533219867365
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Official URL: https://doi.org/10.1177/0968533219867365
Abstract
Despite laudable intentions, since its inception, the Mental Capacity Act 2005 of England and Wales (MCA) has proved to be a controversial piece of legislation. The majority of legal scholarship has concentrated on the problems created by the Act in relation to the treatment of incapacitated patients. However, there is an additional and somewhat unexplored dimension to the MCA, that of research. We argue here that the research provisions of the MCA are poorly drafted and do not provide an appropriate balance between protection and empowerment. We also assert that contrasting obligations and expectations are placed on different parties in the approval process, which creates a blurred sense of responsibility and a potential chilling effect.
| Item Type: | Journal Article | ||||||||
|---|---|---|---|---|---|---|---|---|---|
| Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
| Journal or Publication Title: | Medical Law International | ||||||||
| Publisher: | Sage | ||||||||
| ISSN: | 0968-5332 | ||||||||
| Official Date: | 1 June 2019 | ||||||||
| Dates: |
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| Volume: | 19 | ||||||||
| Number: | 2-3 | ||||||||
| Page Range: | pp. 81-112 | ||||||||
| DOI: | 10.1177/0968533219867365 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Restricted or Subscription Access | ||||||||
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