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The views and aspirations of young people with autism spectrum disorders and their provision in the new education health and care plans in England

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Gaona, Carolina, Castro, Susana and Palikara, Olympia (2020) The views and aspirations of young people with autism spectrum disorders and their provision in the new education health and care plans in England. Disability and Rehabilitation, 42 (23). pp. 3383-3394. doi:10.1080/09638288.2019.1593520 ISSN 0963-8288.

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Official URL: http://dx.doi.org/10.1080/09638288.2019.1593520

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Abstract

Background:
The new special educational needs and disability legislation in England has introduced Education Health and Care plans as statutory documents for children with special educational needs, and has extended provision beyond compulsory education, placing transition in a compelling position. This policy recognises the need to include the views, wishes and aspirations of children and young people in the development of provision to cater for their needs. For young people with autism spectrum disorders and their families, transition to post-16 education and employment could be challenging. This study aimed to explore how voices of young people with autism spectrum disorders are captured in their Education Health and Care plans.
Methods:
These views were collected from the Education Health and Care plans of 12 young people with autism spectrum disorders. These plans were analysed inductively and deductively through content analysis, using the International Classification of Functioning, Disability and Health: Children and Youth Version as a coding framework.
Results:
Discrepancies were found between plans concerning the ways in which the voices of young people with ASD were elicited. A total of 189 functioning codes were identified, with a prevalence of activities and participation codes to reflect their views, followed by body functions and lastly environmental factors.
Conclusion:
These disparities are discussed in light of the biopsychosocial model of functioning and health, and the new English policy. Implications for adopting the International Classification of Functioning framework to give voice to young people with autism spectrum disorders are also discussed.

Item Type: Journal Article
Divisions: Faculty of Social Sciences > Centre for Education Studies (2013- )
Journal or Publication Title: Disability and Rehabilitation
Publisher: Taylor & Francis
ISSN: 0963-8288
Official Date: 2020
Dates:
DateEvent
2020Published
6 May 2019Available
6 March 2019Accepted
Volume: 42
Number: 23
Page Range: pp. 3383-3394
DOI: 10.1080/09638288.2019.1593520
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access
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