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Comparing parental stress of children with neurodevelopmental disorders : the case of Williams syndrome, Down syndrome and autism spectrum disorders

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Ashworth, Maria, Palikara, Olympia and Van Herwegen, Jo (2019) Comparing parental stress of children with neurodevelopmental disorders : the case of Williams syndrome, Down syndrome and autism spectrum disorders. Journal of Applied Research in Intellectual Disabilities, 32 (5). pp. 1047-1057. doi:10.1111/jar.12594 ISSN 1360-2322.

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Official URL: http://dx.doi.org/10.1111/jar.12594

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Abstract

Background
Although parental stress is higher for children with neurodevelopmental disorders (NDs), it is unclear how this stress compares to more common NDs. The current study compared stress in parents of children with Williams syndrome (WS), Down syndrome (DS) and autism spectrum disorders (ASD). The impact of individual and contextual factors was also explored.
Method
Parents of children with WS (n = 107), DS (n = 79) and ASD (n = 79) completed a background questionnaire, a parental stress questionnaire and a satisfaction with life questionnaire.
Results
Although all groups displayed similar levels of parental stress, the factors that influenced this stress differed between the groups. There were also differences for life satisfaction and relationships between parental stress and individual and contextual factors.
Conclusions
Although parents of children with NDs are not at an increased risk of parental stress, the results suggest that interventions should be syndrome‐specific.

Item Type: Journal Article
Divisions: Faculty of Social Sciences > Centre for Education Studies (2013- )
Journal or Publication Title: Journal of Applied Research in Intellectual Disabilities
Publisher: Wiley
ISSN: 1360-2322
Official Date: 1 August 2019
Dates:
DateEvent
1 August 2019Published
5 April 2019Available
27 February 2019Accepted
Volume: 32
Number: 5
Page Range: pp. 1047-1057
DOI: 10.1111/jar.12594
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access
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