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Trapped in a disrupted normality : survivors' and partners' experiences of life after a sudden cardiac arrest

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Whitehead, Laura, Tierney, Stephanie, Biggerstaff, Deborah, Perkins, Gavin D. and Haywood, Kirstie L. (2020) Trapped in a disrupted normality : survivors' and partners' experiences of life after a sudden cardiac arrest. Resuscitation, 147 . pp. 81-87. doi:10.1016/j.resuscitation.2019.12.017 ISSN 0300-9572.

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Official URL: https://doi.org/10.1016/j.resuscitation.2019.12.01...

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Abstract

Aim of the study
Advances in resuscitation science have resulted in a growing number of out-of-hospital cardiac arrest (OHCA) survivors. However, we know very little about the natural history of recovery and the unmet needs of survivors and their partners. This qualitative study sought to address this knowledge gap to improve understanding of the consequences of surviving cardiac arrest.

Methods
In-depth qualitative interviews were undertaken separately with survivors and their partners between 3 and 12-months following the cardiac arrest. An interpretative phenomenological approach (IPA) to data analysis was adopted. Developing themes were discussed between members of the research team.

Results
8 survivors (41–79 years; 5 male; mean time 6.3 months post-hospital discharge) and 3 partners (1 male) were interviewed. The key (super-ordinate) theme of being ‘trapped in a disrupted normality’ was identified within the data. Five related subordinate themes included: existential impact, physical ramifications, emotional consequences, limiting participation in social activities and altered family roles.

Conclusion
Recovery for survivors is hindered by a wide range of physical, emotional, cognitive, social and spiritual challenges that disrupt perceptions of ‘normality’. Survivors and their carers may benefit from focussing on establishing a ‘new normal’ rather than striving to achieve a pre-cardiac social and physical position. Survivor-centred assessment should support rather than undermine this goal.

Item Type: Journal Article
Subjects: R Medicine > RC Internal medicine
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing
Library of Congress Subject Headings (LCSH): Cardiac arrest , Near-death experiences, Cardiac resuscitation
Journal or Publication Title: Resuscitation
Publisher: Elsevier Ireland Ltd
ISSN: 0300-9572
Official Date: 1 February 2020
Dates:
DateEvent
1 February 2020Published
27 December 2019Available
19 December 2019Accepted
Volume: 147
Page Range: pp. 81-87
DOI: 10.1016/j.resuscitation.2019.12.017
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access
Date of first compliant deposit: 24 January 2020
Date of first compliant Open Access: 27 December 2020
Funder: N/a
Grant number: N/a

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