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The social and ethical implications of genetic screening - part 1 : spinal muscular atrophy screening survey
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Boardman, Felicity K. (2017) The social and ethical implications of genetic screening - part 1 : spinal muscular atrophy screening survey. [Dataset]
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Official URL: https://doi.org/10.5255/UKDA-SN-852600
Abstract
This data file contains the responses of 337 participants who completed the SMA Screening Survey (UK). All participants live with Spinal Muscular Atrophy in some capacity (either having it themselves or having it in their family). Participants were asked about their views towards population genetic screening: pre-conception genetic screening, prenatal genetic screening and newborn genetic screening. They were also asked about their previous use of reproductive genetic technologies and their views on the wider issue of pregnancy termination. Data collection occurred between September 2014 and June 2015. A related data collection consisting of interview transcripts is also made available (see Related Resources).
Item Type: | Dataset | ||||||
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Subjects: | R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine | ||||||
Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School | ||||||
Type of Data: | Quantitative survey data | ||||||
Library of Congress Subject Headings (LCSH): | Spinal muscular atrophy -- Testing -- Public opinion -- Great Britain, Genetic screening | ||||||
Publisher: | University of Warwick, Warwick Medical School | ||||||
Official Date: | 15 March 2017 | ||||||
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Status: | Not Peer Reviewed | ||||||
Publication Status: | Published | ||||||
Media of Output (format): | .xls .xlsx .pdf | ||||||
Access rights to Published version: | Open Access (Creative Commons) | ||||||
Copyright Holders: | University of Warwick | ||||||
Description: | Data record consists of two data files in .xls and .xlsx format and a PDF documentation file which contains a copy of the survey questions asked. |
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