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“I’m just a long history of people rejecting referrals” experiences of young people who fell through the gap between child and adult mental health services

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Appleton, Rebecca, Elahi, Farah, Tuomainen, Helena, Canaway, Alastair and Singh, Swaran P. (2021) “I’m just a long history of people rejecting referrals” experiences of young people who fell through the gap between child and adult mental health services. European Child and Adolescent Psychiatry, 30 . pp. 401-413. doi:10.1007/s00787-020-01526-3 ISSN 1018-8827.

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Official URL: http://dx.doi.org/10.1007/s00787-020-01526-3

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Abstract

The paediatric-adult split in mental health care necessitates young people to make a transition between services when they
reach the upper end of child and adolescent mental health services (CAMHS). However, we know that this transition is often poor, and not all young people who require ongoing support are able to continue care in adult mental health services (AMHS). These young people are said to have fallen through the gap between services. This research aimed to explore the reasons why young people fall through the gap between CAMHS and AMHS, and what effect his has had on them and their families. Narrative interviews were conducted with 15 young people and 15 parents, representing 19 unique transition stories. Themes were identified collaboatively using thematic analysis. Reasons for falling through the gap were grouped into systemic problems and problems with the quality of care received. Effects of alling through the gap were grouped into separate themes for young people (feeling abandoned; struggling to manage without continued care; problems with medication) and parents (emotional impact of care ending; parents taking an active role in the young person’s care). To our knowledge, this is the firt qualitative study that has focused only on the experiences of young people who have fallen through the gap between services. This research adds novel findings o existing literature regarding barriers to transition and the effectsof discontinuity of care.

Item Type: Journal Article
Subjects: H Social Sciences > HV Social pathology. Social and public welfare
R Medicine > RA Public aspects of medicine
R Medicine > RJ Pediatrics
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Mental Health and Wellbeing
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Mental health , Child mental health , Mentally ill children , Mentally ill teenagers , Mentally ill teenagers -- Services for , Youth -- Mental health services, Youth -- Mental health
Journal or Publication Title: European Child and Adolescent Psychiatry
Publisher: Springer Medizin
ISSN: 1018-8827
Official Date: March 2021
Dates:
DateEvent
March 2021Published
9 April 2020Available
31 March 2020Accepted
Volume: 30
Page Range: pp. 401-413
DOI: 10.1007/s00787-020-01526-3
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Open Access (Creative Commons)
Date of first compliant deposit: 14 April 2020
Date of first compliant Open Access: 14 April 2020

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