Harvey, Hannah, Ashworth, Maria, Palikara, Olympia and Van Herwegen, Jo (2020) The underreporting of vision problems in statutory documents of children with Williams syndrome and Down syndrome. Journal of Autism and Developmental Disorders . doi:10.1007/s10803-020-04520-5 (In Press)

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Abstract

Vision problems can lead to negative developmental outcomes. Children with Williams syndrome and Down syndrome are at higher risk of vision problems, and these are less likely to be detected due to diagnostic overshadowing and difficulty accessing eye-care. Education, Health and Care (EHC) plans are statutory documents, introduced by the Children and Families Act 2014 in England, with the intention of integrating provision across these domains. Vision issues should be reported in these plans, and recommendations made about appropriate adjustments for them. We analysed the EHC plans from 53 children with Down or Williams syndrome. Our results showed significant underreporting, especially for children with Williams syndrome, and little explanation of what adjustments should be made. We also report pockets of good practice.

Item Type:	Journal Article
Subjects:	H Social Sciences > HV Social pathology. Social and public welfare L Education > LB Theory and practice of education R Medicine > RC Internal medicine R Medicine > RG Gynecology and obstetrics R Medicine > RJ Pediatrics
Divisions:	Faculty of Social Sciences > Centre for Education Studies (2013- )
Library of Congress Subject Headings (LCSH):	Down syndrome, Child development, Williams syndrome, Special education , Children with disabilities -- Education, Learning disabled children -- Education, Children with visual disabilities
Journal or Publication Title:	Journal of Autism and Developmental Disorders
Publisher:	Springer
ISSN:	0162-3257
Official Date:	2020
Dates:	Date Event 2020 Published 28 April 2020 Available 22 April 2020 Accepted
Date of first compliant deposit:	8 June 2020
DOI:	10.1007/s10803-020-04520-5
Status:	Peer Reviewed
Publication Status:	In Press
Publisher Statement:	This is a post-peer-review, pre-copyedit version of an article published in Journal of Autism and Developmental Disorders. The final authenticated version is available online at: http://dx.doi.org/10.1007/s10803-020-04520-5
Access rights to Published version:	Restricted or Subscription Access

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