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Online mindfulness stress intervention for family carers of children and adults with intellectual disabilities : feasibility randomized controlled trial
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Flynn, Samantha, Hastings, Richard P., Burke, Christine, Howes, Simon, Lunsky, Yona, Weiss, Jonathan A. and Bailey, Tom (2020) Online mindfulness stress intervention for family carers of children and adults with intellectual disabilities : feasibility randomized controlled trial. Mindfulness, 11 . pp. 2161-2175. doi:10.1007/s12671-020-01436-0 ISSN 1868-8527.
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Official URL: https://doi.org/10.1007/s12671-020-01436-0
Abstract
Objectives: Family carers of people with intellectual disabilities (ID) are twice as likely as other carers to experience stress and mental ill-health, but research exploring interventions is sparse. Online mindfulness may provide an accessible, cost-effective resource. The addition of guided telephone support could help to tailor an existing intervention for this population. A feasibility randomized controlled trial (RCT) was conducted to inform the development of a definitive RCT.
Methods: Sixty participants were randomized to complete Be Mindful (a brief online mindfulness intervention) either with or without additional Peer Mentor support. Feasibility of recruitment, retention, intervention adherence, and acceptability of study design were examined. Preliminary analyses were undertaken on participant-reported outcomes pre- and post-intervention. Eighteen semi-structured interviews were conducted as a process evaluation.
Results: Feasibility outcomes indicate that it would be possible to recruit and retain (88%) participants to a definitive RCT, and that the study design and intervention are acceptable. The addition of guided telephone support was not burdensome; indeed, it was additionally motivating. Telephone support can be delivered with high fidelity, but this is inconsistent and requires further piloting. Preliminary comparison data indicate small, but non-significant, improvements for participants receiving guided telephone support relative to those who did not over time.
Conclusions: It is feasible to deliver online mindfulness with additional telephone guided support to family carers of people with ID, and this may lead to small benefits over receiving online mindfulness alone. A definitive RCT can be planned to examine the effectiveness and cost-effectiveness of this intervention.
Item Type: | Journal Article | ||||||||
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Subjects: | B Philosophy. Psychology. Religion > BF Psychology H Social Sciences > HQ The family. Marriage. Woman H Social Sciences > HV Social pathology. Social and public welfare R Medicine > R Medicine (General) R Medicine > RA Public aspects of medicine R Medicine > RC Internal medicine R Medicine > RJ Pediatrics |
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Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
Library of Congress Subject Headings (LCSH): | Intellectual disability, Caregivers -- Services for , Mindfulness (Psychology), Stress management , Clinical trials | ||||||||
Journal or Publication Title: | Mindfulness | ||||||||
Publisher: | Springer New York LLC | ||||||||
ISSN: | 1868-8527 | ||||||||
Official Date: | September 2020 | ||||||||
Dates: |
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Volume: | 11 | ||||||||
Page Range: | pp. 2161-2175 | ||||||||
DOI: | 10.1007/s12671-020-01436-0 | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Reuse Statement (publisher, data, author rights): | This is a post-peer-review, pre-copyedit version of an article published in Mindfulness. The final authenticated version is available online at: http://dx.doi.org/10.1007/s12671-020-01436-0 | ||||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||||
Date of first compliant deposit: | 11 June 2020 | ||||||||
Date of first compliant Open Access: | 27 August 2020 | ||||||||
RIOXX Funder/Project Grant: |
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