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‘It’s like she’s talking about me’ – exploring the value and potential impact of a YouTube film presenting a qualitative evidence synthesis about chronic pain : an analysis of online comments
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Toye, Francine, Seers, Kate and Barker, Karen Louise (2020) ‘It’s like she’s talking about me’ – exploring the value and potential impact of a YouTube film presenting a qualitative evidence synthesis about chronic pain : an analysis of online comments. Canadian Journal of Pain, 4 (3). pp. 61-70. doi:10.1080/24740527.2020.1785853 ISSN 2474-0527.
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Official URL: http://dx.doi.org/10.1080/24740527.2020.1785853
Abstract
Background: There is very limited research exploring the value and impact of qualitative research in chronic pain despite the large volume of research.
Aims: To find out whether viewers comments in response to a YouTube film, portraying findings from a qualitative evidence synthesis about living with pain, revealed any potential value or impact to viewers.
Methodological approach: A thematic analysis of online comments to evaluate the impact of an arts-based health research film on people living with chronic pain.
Methods: We collected on-line data posted in response to the film ‘Struggling to be me’. We used themes from a large review of qualitative research as an a priori analytic framework. We used inductive thematic analysis to distil the essence of data that did not fit this framework.
Results: We developed two inductive themes that explored the value and potential impact of watching the film online: (1) It has given voice to our suffering, and (2) it makes me feel that I am not alone. Two subthemes added insight to the a priori framework: First, I have had enough of me added insight to the theme, My life is impoverished and confined; Second, I am treated like a criminal because I take opioids, added insight to the theme, Lost personal credibility.
Conclusions: Our findings indicate that watching the YouTube film has potential value and impact, giving voice to suffering and making people feel that they are not alone. There are specific ethical challenges relating to internet mediated research.
| Item Type: | Journal Article | ||||||
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| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing |
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| Journal or Publication Title: | Canadian Journal of Pain | ||||||
| Publisher: | Taylor & Francis Inc. | ||||||
| ISSN: | 2474-0527 | ||||||
| Official Date: | 19 June 2020 | ||||||
| Dates: |
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| Volume: | 4 | ||||||
| Number: | 3 | ||||||
| Page Range: | pp. 61-70 | ||||||
| DOI: | 10.1080/24740527.2020.1785853 | ||||||
| Status: | Peer Reviewed | ||||||
| Publication Status: | Published | ||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||
| Date of first compliant deposit: | 11 September 2020 | ||||||
| Date of first compliant Open Access: | 11 September 2020 |
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