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'Above and beyond' : the perceptions of mothers of children with autism about 'good practice' by professionals and services

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Stanford, Catherine E., Totsika, Vaso and Hastings, Richard P. (2020) 'Above and beyond' : the perceptions of mothers of children with autism about 'good practice' by professionals and services. Research in Autism Spectrum Disorders, 77 . 101615. doi:10.1016/j.rasd.2020.101615

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Official URL: https://doi.org/10.1016/j.rasd.2020.101615

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Abstract

The aim of the present study was to investigate positive experiences with professionals and services, from the perspective of mothers of children with autism. Parents’ negative experiences with services are well documented, but the experiences of ‘good practice’ have been less well researched. Seventeen mothers of children with autism aged between 5 and 10 years old were interviewed regarding their experiences of accessing services for their child, and in particular their experiences of good practice. Using inductive thematic analysis, three core themes were identified. These related to mothers valuing aspects of professionals’ engagement, manner, and interactions with mothers; elements of professional and services provision (such as knowledge, community building, and hands-on skill development); and the ways services delivered their provision (e.g., through personalisation and adaptation, and ease of access). The findings of this study illustrate that these are clearly aspects of good practice valued by mothers of children with autism, which could be generalised to other neurodevelopmental conditions. Future research should consider establishing directional links between good practice concepts, for example using grounded theory.

Item Type: Journal Article
Subjects: R Medicine > RJ Pediatrics
Divisions: Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
SWORD Depositor: Library Publications Router
Library of Congress Subject Headings (LCSH): Autism in children, Parents of autistic children, Autistic children -- Care
Journal or Publication Title: Research in Autism Spectrum Disorders
Publisher: Elsevier
ISSN: 1750-9467
Official Date: September 2020
Dates:
DateEvent
September 2020Published
17 July 2020Available
12 July 2020Accepted
Volume: 77
Article Number: 101615
DOI: 10.1016/j.rasd.2020.101615
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
UNSPECIFIEDAmbitious About AutismUNSPECIFIED

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