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Custodians of information : patient and physician views on sharing medical records in the acute care setting

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Fritz, Z., Griffiths, Frances and Slowther, Anne (2021) Custodians of information : patient and physician views on sharing medical records in the acute care setting. Health Communication, 36 (14). pp. 1879-1888. doi:10.1080/10410236.2020.1803553

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Official URL: https://doi.org/10.1080/10410236.2020.1803553

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Abstract

In the UK, in the acute in-patient setting, the only information that a patient receives about their medical care is verbal; there is no routine patient access to any part of the medical record. It has been suggested that this should change, so that patients can have real-time access to their notes, but no one has previously explored patient or clinician views on the impact this might have. Semi-structured interviews were conducted with 12 patients and 13 doctors about their experience of information sharing in the context of the acute care setting, and their views on sharing all of the medical records, or a summary note. Interviews were transcribed verbatim, double coded and analyzed using the constant comparative method. Patients were not given written information and did not ask questions even when they wanted to know things. Patients and doctors supported increased sharing of written information, but the purpose of the medical record – and the risks and benefits of sharing it – were disputed. Concerns included disclosing uncertainty, changing what was written, and causing patient anxiety. Benefits included increased transparency. Use of a summary record was welcomed as a way to empower patients, while doctors felt they had a responsibility to curate what information was given and when. A clinical summary for patients would be of benefit to doctors, nurses, patients and their relatives. It should be designed to reflect the needs of all users, and evaluated to consider patient-relevant outcomes and resource implications.

Item Type: Journal Article
Subjects: R Medicine > R Medicine (General)
R Medicine > RA Public aspects of medicine
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH)
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Physician and patient , Communication in medicine, Medical records , Confidential communications -- Physicians
Journal or Publication Title: Health Communication
Publisher: Routledge
ISSN: 1041-0236
Official Date: 2021
Dates:
DateEvent
2021Published
19 August 2020Available
25 July 2020Accepted
Volume: 36
Number: 14
Page Range: pp. 1879-1888
DOI: 10.1080/10410236.2020.1803553
Status: Peer Reviewed
Publication Status: Published
Publisher Statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Health Communication on 19 Aug 2020, available online: https://www.tandfonline.com/doi/full/10.1080/10410236.2020.1803553
Access rights to Published version: Restricted or Subscription Access
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
WT100577MA Wellcome Trusthttp://dx.doi.org/10.13039/100010269
208213/Z/17/ZWellcome Trusthttp://dx.doi.org/10.13039/100010269
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