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Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities

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Willner, P, Rose, J, Stenfert Kroese, B, Murphy, GH, Langdon, Peter E., Clifford, C, Hutchings, H, Watkins, A, Hiles, S and Cooper, V (2020) Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities . doi:10.1111/jar.12811

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Official URL: https://doi.org/10.1111/jar.12811

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Abstract

Introduction: The measures implemented to manage the COVID-19 pandemic have been shown to impair mental health. This problem is likely to be exacerbated for carers.

Method: Informal carers (mainly parents) of children and adults with intellectual disabilities, and a comparison group of parents of children without disabilities, completed an online questionnaire. Almost all the data were collected while strict lockdown conditions were in place.

Results: Relative to carers of children without intellectual disability, carers of both children and adults with intellectual disability had significantly greater levels of a wish fulfillment coping style, defeat/entrapment, anxiety, and depression. Differences were 2-3 times greater than reported in earlier pre-pandemic studies.
Positive correlations were found between objective stress scores and all mental health outcomes.

Conclusions: Despite their greater mental health needs, carers of those with intellectual disability received less social support from a variety of sources. We consider the policy implications of these findings.

Item Type: Journal Article
Subjects: B Philosophy. Psychology. Religion > BF Psychology
Divisions: Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
Library of Congress Subject Headings (LCSH): Caregivers -- Psychology, Caregivers -- Mental health, COVID-19 (Disease), Depression, Mental, People with mental disabilities
Journal or Publication Title: Journal of Applied Research in Intellectual Disabilities
Publisher: Wiley-Blackwell Publishing Ltd.
ISSN: 1468-3148
Official Date: 4 September 2020
Dates:
DateEvent
4 September 2020Available
31 August 2020Accepted
DOI: 10.1111/jar.12811
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Open Access
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