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Factors influencing access to early intervention for families of children with developmental disabilities : a narrative review

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Sapiets, Suzi J., Totsika, Vasiliki and Hastings, Richard P. (2020) Factors influencing access to early intervention for families of children with developmental disabilities : a narrative review. Journal of Applied Research in Intellectual Disabilities . doi:10.1111/jar.12852 (In Press)

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Official URL: https://doi.org/10.1111/jar.12852

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Abstract

Background
Early intervention (EI) can improve a range of outcomes for families of children with developmental disabilities. However, research indicates the level of access does not always match the level of need. To address disparities, it is essential to identify factors influencing access.

Method
We propose a framework where access to EI is conceptualised as a process that includes three main phases. A narrative review examined potential barriers, facilitators and modifiers of access for each phase.

Results
The process of access to EI includes the following: 1) recognition of need, 2) identification or diagnosis and 3) EI provision or receipt. Several factors affecting access to EI for each phase were identified, related to the family, services, the intersection between family and services, and the context.

Conclusion
A broad range of factors appear to influence the process of access to EI for this population. Our framework can be used in future research investigating access. Broad implications for policy, practice and future research to improve access to EI are discussed.

Item Type: Journal Article
Subjects: L Education > LC Special aspects of education
R Medicine > RC Internal medicine
Divisions: Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
Library of Congress Subject Headings (LCSH): Autism -- Treatment, Children with disabilities -- Services for, Autism in children -- Treatment, Early childhood education, Developmental disabilities
Journal or Publication Title: Journal of Applied Research in Intellectual Disabilities
Publisher: Wiley-Blackwell Publishing Ltd.
ISSN: 1468-3148
Official Date: 22 December 2020
Dates:
DateEvent
22 December 2020Available
3 December 2020Accepted
Date of first compliant deposit: 10 December 2020
DOI: 10.1111/jar.12852
Status: Peer Reviewed
Publication Status: In Press
Publisher Statement: "This is the peer reviewed version of the following article: [FULL CITE], which has been published in final form at [Link to final article using the DOI]. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions."
Access rights to Published version: Open Access
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
UNSPECIFIEDUniversity of Warwickhttp://dx.doi.org/10.13039/501100000741
UNSPECIFIEDCerebrahttp://dx.doi.org/10.13039/501100002833
UNSPECIFIEDNational Society for Mentally Handicapped Childrenhttp://viaf.org/viaf/147203759
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