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Experiences of dementia : parental young onset dementia and living alone
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Poole, Courtney (2019) Experiences of dementia : parental young onset dementia and living alone. DClinPsych thesis, University of Warwick.
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Official URL: http://webcat.warwick.ac.uk/record=b3490819~S15
Abstract
This thesis explores experiences of dementia from different perspectives. A diagnosis of dementia has a significant impact on the person themselves and the friends and family members who support them. How dementia is experienced will be influenced by contextual factors, such as age and living situation for the person with dementia, or relationship to the person with dementia for close friends or family members. Through exploration of these factors, this thesis aims to contribute to the literature on experiences of dementia and to inform future clinical and research practice.
The first chapter is a systematic literature review exploring experiences and needs of children who have a parent with young onset dementia. Findings from 16 studies were critically evaluated and synthesised using a meta-ethnographic approach. Three themes explained children’s experience of their parent’s deterioration and the psychological and practical impact that it has on them. Each theme is explored and recommendations regarding support for children of people with young onset dementia are considered.
The second chapter presents a grounded theory study into the phenomenon of living alone with dementia. Seven people living alone with dementia and seven friend and family ‘informants’ were interviewed, and a three-level data-grounded theoretical model was developed from the findings. The model is presented and unique concepts are discussed: experiences of aloneness and concerns about the future. The model is used to recommend avenues for informal and professional support to help people to live alone successfully with dementia.
The third chapter presents a reflective report on the author’s experience of conducting research with people with dementia. It explores the assumptions, biases and beliefs about dementia that arose and were challenged at different stages during the research process. It also suggests how the learning resulting from reflection on this research can inform future clinical and research situations.
Item Type: | Thesis (DClinPsych) | ||||
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Subjects: | R Medicine > RC Internal medicine | ||||
Library of Congress Subject Headings (LCSH): | Dementia, Presenile dementia, Dementia -- Patients -- Family relationships, Dementia -- Patients -- Home care, Living alone | ||||
Official Date: | May 2019 | ||||
Dates: |
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Institution: | University of Warwick | ||||
Theses Department: | Department of Psychology | ||||
Thesis Type: | DClinPsych | ||||
Publication Status: | Unpublished | ||||
Supervisor(s)/Advisor: | Patterson, Tom ; Buckell, Anna ; Muers, Jane ; Colombo, Tony | ||||
Format of File: | |||||
Extent: | vi, 146 leaves : illustrations | ||||
Language: | eng |
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