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COVID‐19 impact on psychological outcomes of parents, siblings and children with intellectual disability : longitudinal before and during lockdown design
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Bailey, Tom, Hastings, R. P. and Totsika, Vasiliki (2021) COVID‐19 impact on psychological outcomes of parents, siblings and children with intellectual disability : longitudinal before and during lockdown design. Journal of Intellectual Disability Research, 65 (5). pp. 397-404. doi:10.1111/jir.12818 ISSN 1365-2788.
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J intellect Disabil Res - 2021 - Bailey - COVID‐19 impact on psychological outcomes of parents siblings and children with.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons Attribution Non-commercial No Derivatives 4.0. Download (172Kb) | Preview |
Official URL: https://doi.org/10.1111/jir.12818
Abstract
Background
Parents of children with intellectual disability (ID) report comparatively lower levels of well-being than parents of children without ID. Similarly, children with ID, and to a lesser extent their siblings, are reported to show comparatively higher levels of behaviour and emotional problems. Psychological problems may be accentuated by restrictions associated with the COVID-19 pandemic, due to increased social, caring and economic stressors and reduced social support. However, existing studies have not been able to examine the impact of COVID-19 restrictions accounting for pre-COVID levels of well-being in these families. In a naturalistic design, we examined outcomes for parents, siblings and children with ID in a two-wave longitudinal study where Wave 2 data were gathered for some families before and some during COVID-19 restrictions.
Methods
Parents of children with ID who took part in a Wave 2 survey pre-lockdown (n = 294) and during/post-lockdown (n = 103) completed a number of measures about their well-being and the behaviour and emotional problems of both their child with ID and their nearest-in-age sibling. These same measures had also been completed for all families 2–3 years previously in Wave 1 of the study.
Results
After accounting for covariates including family socio-economic circumstances, pre-lockdown and post-lockdown groups did not differ on Waves 1 to 2 change for measures of parental psychological distress, life satisfaction, the impact of caregiving on their lives or perceived positive gains; nor child or sibling internalising or externalising behaviour problems.
Conclusions
Findings of the current study indicate that during and shortly after the COVID-19 lockdown in the United Kingdom, well-being in families of children with an ID (as reported by parents) was at similar levels compared with prior to the lockdown period.
| Item Type: | Journal Article | ||||||||
|---|---|---|---|---|---|---|---|---|---|
| Subjects: | R Medicine > RA Public aspects of medicine | ||||||||
| Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
| SWORD Depositor: | Library Publications Router | ||||||||
| Library of Congress Subject Headings (LCSH): | COVID-19 (Disease) -- Psychological aspects, Intellectual disability, People with mental disabilities, People with disabilities -- Diseases | ||||||||
| Journal or Publication Title: | Journal of Intellectual Disability Research | ||||||||
| Publisher: | Wiley | ||||||||
| ISSN: | 1365-2788 | ||||||||
| Official Date: | May 2021 | ||||||||
| Dates: |
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| Volume: | 65 | ||||||||
| Number: | 5 | ||||||||
| Page Range: | pp. 397-404 | ||||||||
| DOI: | 10.1111/jir.12818 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||||
| Date of first compliant deposit: | 14 March 2022 | ||||||||
| Date of first compliant Open Access: | 14 March 2022 | ||||||||
| RIOXX Funder/Project Grant: |
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| Is Part Of: | 1 |
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