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Patient and public involvement in research : a journey to co-production

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Price, Amy, Clarke, Mike, Staniszewska, Sophie, Chu, Larry, Tembo, Doreen, Kirkpatrick, Marjorie and Nelken, Yasmine (2022) Patient and public involvement in research : a journey to co-production. Patient Education and Counseling, 105 (4). pp. 1041-1047. doi:10.1016/j.pec.2021.07.021 ISSN 0738-3991.

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Official URL: https://doi.org/10.1016/j.pec.2021.07.021

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Abstract

The public and patients can be powerful sensors for shaping and powering healthcare research. They are joining research teams as investigators and collaborators to co-produce evidence for the practical use of interventions in clinical practice. While clinicians and researchers are encouraged by funders and policymakers to involve the public and patients as partners in research, knowledge on what involvement consists of is limited, and the continuum between consultation, collaboration and co-production are not clearly defined. In this article, we explore Patient and Public Involvement (PPI) and introduce greater involvement through research co-production. Co-production describes ways that research partnership can work through public and patient involvement and we outline the similarities of co-production to "The Commons", a strategy utilized by economists to increase effective use of resources. We share examples of how public and patient involvement have used co-production, to demonstrate financial and health benefits. We then outline practical challenges at system, social and cultural levels and consider how others have worked to resolve them. [Abstract copyright: Copyright © 2021 Elsevier B.V. All rights reserved.]

Item Type: Journal Article
Subjects: R Medicine > R Medicine (General)
R Medicine > RA Public aspects of medicine
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
SWORD Depositor: Library Publications Router
Library of Congress Subject Headings (LCSH): Patient participation , Patient-centered health care, Medical care -- Research , Allied health personnel and patient , Health planning -- Citizen participation
Journal or Publication Title: Patient Education and Counseling
Publisher: Elsevier Ireland Ltd.
ISSN: 0738-3991
Official Date: April 2022
Dates:
DateEvent
April 2022Published
19 July 2021Available
12 July 2021Accepted
Volume: 105
Number: 4
Page Range: pp. 1041-1047
DOI: 10.1016/j.pec.2021.07.021
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access
Date of first compliant deposit: 16 August 2022
Date of first compliant Open Access: 16 August 2022

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