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Hopeful dying? The meanings and practice of hope in palliative care family meetings
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Kirby, Emma R., Broom, Alex, MacArtney, John I., Lewis, Sophie and Good, Phillip (2021) Hopeful dying? The meanings and practice of hope in palliative care family meetings. Social Science & Medicine, 291 . 114471. doi:10.1016/j.socscimed.2021.114471
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Official URL: http://dx.doi.org/10.1016/j.socscimed.2021.114471
Abstract
Hope can carry considerable allure for people facing imminent mortality and for those who care for them. Yet, how hope is variously and relationally (re)produced within end-of-life care settings, remains under-researched. In this study, we aimed to better understand hope as it circulates within palliative care, drawing on video recorded family meetings and pre- and post-meeting qualitative interviews, within two hospitals in Queensland, Australia. Our findings highlight family meetings as an important site for articulations of hope and hopefulness. The results illustrate how hope is recalibrated within the transition to and through palliative care, the tensions between hope and futility, and the work of hope in discussions of goals and expectations. Through our analysis we argue that hopefulness within family meetings, and in palliative care more broadly, is collectively produced and opens up discourses of hope to the lived experience of terminality. Attending to the nuances of hope, including moving beyond the determinative (hope for more life/hope for a quick death), can elucidate the possibilities and problems of the collective negotiation of hope at the end of life, including how hope can be drawn on to express support and solidarity.
| Item Type: | Journal Article | ||||||||
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| Subjects: | B Philosophy. Psychology. Religion > BF Psychology H Social Sciences > HQ The family. Marriage. Woman R Medicine > R Medicine (General) |
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| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School | ||||||||
| Library of Congress Subject Headings (LCSH): | Hope, Palliative treatment -- Australia, Terminal care -- Australia, Communication in families | ||||||||
| Journal or Publication Title: | Social Science & Medicine | ||||||||
| Publisher: | Elsevier | ||||||||
| ISSN: | 0277-9536 | ||||||||
| Official Date: | December 2021 | ||||||||
| Dates: |
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| Volume: | 291 | ||||||||
| Article Number: | 114471 | ||||||||
| DOI: | 10.1016/j.socscimed.2021.114471 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Restricted or Subscription Access |
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