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Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020

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Flynn, Samantha and Hatton, Chris (2021) Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020. Tizard Learning Disability Review, 26 (3). pp. 174-179. doi:10.1108/TLDR-06-2021-0014

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Official URL: https://doi.org/10.1108/TLDR-06-2021-0014

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Abstract

Purpose: This paper presents data about access to health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern Ireland, Scotland and Wales.
Methodology: Data were collected directly from 621 adults with learning disabilities and through separate proxy reports by family carers and paid support staff of another 378 adults with learning disabilities. The data were collected between December 2020 and February 2021, and concerned the use of health and social care services since the start of the first COVID-19 national lockdown in March 2020.
Findings: Access to and use of health and social care services significantly reduced for adults with learning disabilities across the UK during the COVID-19 pandemic between March 2020 and February 2021, with many people not receiving any services at all during that period. Similar patterns were seen across England, Northern Ireland, Scotland and Wales. However, data suggest some variations between countries for some services.
Implications: Future pandemic planning must ensure that access to these essential services is not completely lost for adults with learning disabilities and their family carers, as it was in some cases during the COVID-19 pandemic in 2020.
Originality: This is the largest study about the impact of the COVID-19 pandemic on health and social care services for adults with learning disabilities in the UK. We primarily collected data directly from adults with learning disabilities, and worked with partner organisations of people with learning disabilities throughout the study.

Item Type: Journal Article
Subjects: H Social Sciences > HV Social pathology. Social and public welfare
R Medicine > RA Public aspects of medicine
Divisions: Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
Library of Congress Subject Headings (LCSH): People with mental disabilities -- Care, People with mental disabilities -- Medical care, COVID-19 (Disease), People with disabilities -- Medical care -- Great Britain, Health services accessibility, Public health -- Great Britain
Journal or Publication Title: Tizard Learning Disability Review
Publisher: Emerald Publishing Limited
ISSN: 1359-5474
Official Date: 30 September 2021
Dates:
DateEvent
30 September 2021Published
1 September 2021Available
12 June 2021Accepted
Volume: 26
Number: 3
Page Range: pp. 174-179
DOI: 10.1108/TLDR-06-2021-0014
Status: Peer Reviewed
Publication Status: Published
Publisher Statement: Copyright © 2021, Emerald Publishing Limited. This AAM is provided for your own personal use only. It may not be used for resale, reprinting, systematic distribution, emailing, or for any other commercial purpose without the permission of the publisher.
Access rights to Published version: Restricted or Subscription Access
Copyright Holders: Copyright © 2021, Emerald Publishing Limited
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
MR/V028596/1UK Research and Innovationhttp://dx.doi.org/10.13039/100014013
COV0196[NIHR] National Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272
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Contributors:
ContributionNameContributor ID
Research GroupThe Coronavirus and people with learning disabilities Study Team, UNSPECIFIED

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