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A deliberative approach to valuing capabilities : assessing and valuing changes in the well-being of those close to patients receiving supportive end of life care
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Kinghorn, Philip, Canaway, Alastair, Bailey, Cara, Al-Janabi, Hareth and Coast, Joanna (2022) A deliberative approach to valuing capabilities : assessing and valuing changes in the well-being of those close to patients receiving supportive end of life care. Journal of Human Development and Capabilities, 23 (3). pp. 455-476. doi:10.1080/19452829.2021.2008885 ISSN 1945-2829.
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WRAP-deliberative-approach-valuing-capabilities-Canaway-2021.pdf - Accepted Version Embargoed item. Restricted access to Repository staff only until 1 June 2023. Contact author directly, specifying your specific needs. - Requires a PDF viewer. Download (863Kb) |
Official URL: https://doi.org/10.1080/19452829.2021.2008885
Abstract
Aim: Explore the use of deliberative valuation to elicit relative weights for a set of capabilities identified as being important and relevant to those close to patients receiving supportive care at the end of life. Methods: Focus groups, involving the general UK population (n = 38) and policy-makers (n = 29) with experience of, and influence on, priorities for end of life care. Public participants completed two valuation tasks (budget pie and visual analogue scale (VAS)) individually, discussed their responses, and then recorded a final (individual) response. Policy-makers completed the VAS tasks in a separate series of focus groups. Quantitative and qualitative analyses of participants’ responses are reported. Results: Individual values were aggregated to form relative weights for the capabilities. Capabilities given greatest weighting were “good communication between care providers and close persons” and “practical support for close persons”. The quantitative impact of deliberation on weights overall was negligible, but qualitative findings indicated that disclosure of personal experiences did appear to prompt others to consider issues from new perspectives. Discussion: Deliberative valuation was found to be a potentially feasible method for generating weights. However, further consideration needs to be given as to how to optimise recruitment whilst ensuring that participants actively engage with the task.
| Item Type: | Journal Article | ||||||||
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| Subjects: | R Medicine > R Medicine (General) | ||||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Terminal care -- Evaluation, Terminally ill -- Care, Palliative treatment -- Evaluation, Capabilities approach (Social sciences), Terminal care -- Economic aspects, Terminal care -- Cost effectiveness, Deliberative valuation | ||||||||
| Journal or Publication Title: | Journal of Human Development and Capabilities | ||||||||
| Publisher: | Routledge | ||||||||
| ISSN: | 1945-2829 | ||||||||
| Official Date: | 2022 | ||||||||
| Dates: |
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| Volume: | 23 | ||||||||
| Number: | 3 | ||||||||
| Page Range: | pp. 455-476 | ||||||||
| DOI: | 10.1080/19452829.2021.2008885 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Reuse Statement (publisher, data, author rights): | This is an Accepted Manuscript of an article published by Taylor & Francis in Journal of Human Development and Capabilities on 01/12/2021, available online: http://www.tandfonline.com/10.1080/19452829.2021.2008885 | ||||||||
| Access rights to Published version: | Restricted or Subscription Access | ||||||||
| Date of first compliant deposit: | 18 November 2021 | ||||||||
| RIOXX Funder/Project Grant: |
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