Skip to content Skip to navigation
University of Warwick
  • Study
  • |
  • Research
  • |
  • Business
  • |
  • Alumni
  • |
  • News
  • |
  • About

University of Warwick
Publications service & WRAP

Highlight your research

  • WRAP
    • Home
    • Search WRAP
    • Browse by Warwick Author
    • Browse WRAP by Year
    • Browse WRAP by Subject
    • Browse WRAP by Department
    • Browse WRAP by Funder
    • Browse Theses by Department
  • Publications Service
    • Home
    • Search Publications Service
    • Browse by Warwick Author
    • Browse Publications service by Year
    • Browse Publications service by Subject
    • Browse Publications service by Department
    • Browse Publications service by Funder
  • Help & Advice
University of Warwick

The Library

  • Login
  • Admin

Patient and public involvement in a UK National Institute for Health Research Programme Grant for Applied Research : experiences from the Chronic Headache Education and Self-management Study (CHESS)

Tools
- Tools
+ Tools

Nichols, Vivien P., Pearce, Gemma, Ellard, David R., Evans, Simon, Haywood, Kirstie L., Norman, Chloe, Potter, Rachel, Sandhu, Harbinder, Stewart, Kimberley, Underwood, Martin and Patel, Shilpa (2021) Patient and public involvement in a UK National Institute for Health Research Programme Grant for Applied Research : experiences from the Chronic Headache Education and Self-management Study (CHESS). Primary Health Care Research & Development, 22 . e72. doi:10.1017/S1463423621000670

[img]
Preview
PDF
WRAP-patient-and-public-involvement-in-a-uk-national-institute-for-health-research-programme-grant-for-applied-research-experiences-from-the-chronic-headache-education-and-self-management-study-chess-2021.pdf - Published Version - Requires a PDF viewer.
Available under License Creative Commons Attribution 4.0.

Download (423Kb) | Preview
Official URL: http://dx.doi.org/10.1017/S1463423621000670

Request Changes to record.

Abstract

Background:
Patient and public involvement (PPI) plays a crucial role in ensuring research is carried out in conjunction with the people that it will impact upon. In this article, we present our experiences and reflections from working collaboratively with patients and public through the lifetime of an National Institute for Health Research (NIHR) programme grant; the Chronic Headache Education and Self-management Study (CHESS) which took place between 2015 and 2020.

PPI over the course of CHESS:
We worked closely with three leading UK migraine charities and a lay advisory group throughout the programme. We followed NIHR standards and used the Guidance for Reporting Involvement of Patients and the Public checklist. We consulted our PPI contacts using a variety of methods depending on the phase of the study and the nature of the request. This included emails, discussions, and face-to-face contact.

PPI members contributed throughout the study in the programme development, in the grant application, ethics documentation, and trial oversight. During the feasibility study; in supporting the development of a classification interview for chronic headache by participating in a headache classification conference, assessing the relevance, and acceptability of patient-reported outcome measures by helping to analyse cognitive interview data, and testing the smartphone application making suggestions on how best to present the summary of data collected for participants. Due to PPI contribution, the content and duration of the study intervention were adapted and a Delphi study with consensus meeting developed a core outcome set for migraine studies.

Conclusions:
The involvement of the public and patients in CHESS has allowed us to shape its overall design, intervention development, and establish a core outcome set for future migraine studies. We have reflected on many learning points for the future application of PPI.

Item Type: Journal Article
Subjects: R Medicine > R Medicine (General)
R Medicine > RB Pathology
R Medicine > RC Internal medicine
Divisions: Faculty of Medicine > Warwick Medical School > Health Sciences > Clinical Trials Unit
Faculty of Medicine > Warwick Medical School > Health Sciences
Faculty of Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Headache -- Diagnosis, Headache -- Prognosis, Headache -- Treatment, Chronic pain, Patient participation, Head -- Diseases
Journal or Publication Title: Primary Health Care Research & Development
Publisher: Cambridge University Press
ISSN: 1463-4236
Official Date: 2021
Dates:
DateEvent
2021Published
19 November 2021Available
4 October 2021Accepted
Volume: 22
Article Number: e72
DOI: 10.1017/S1463423621000670
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Open Access
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
UNSPECIFIEDNational Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272
RP-PG-1212-20018Programme Grants for Applied Researchhttp://dx.doi.org/10.13039/501100007602
Contributors:
ContributionNameContributor ID
Research GroupCHESS team, UNSPECIFIED

Request changes or add full text files to a record

Repository staff actions (login required)

View Item View Item

Downloads

Downloads per month over past year

View more statistics

twitter

Email us: wrap@warwick.ac.uk
Contact Details
About Us