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Data sharing across osteoarthritis research groups and disciplines : opportunities and challenges
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Evans, Jill, Hamilton, Rebecca, Biggs, Paul, Holt, Cathy and Elliott, Mark T. (2022) Data sharing across osteoarthritis research groups and disciplines : opportunities and challenges. Osteoarthritis and Cartilage Open, 4 (1). 100236. doi:10.1016/j.ocarto.2022.100236 ISSN 2665-9131.
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Official URL: https://doi.org/10.1016/j.ocarto.2022.100236
Abstract
Background
Osteoarthritis is a heterogeneous condition characterised by a wide variety of factors and represents a worldwide healthcare challenge. There are multiple clinical and research specialisms involved in the diagnosis, prognosis and treatment of osteoarthritis, and there may be opportunities to share or pool data which are currently not being utilised. However, there are challenges to doing so which require carefully structured solutions and partnership working.
Methods
Interviews were conducted with nine experts from various fields within osteoarthritis research. A semi-structured approach was used, and thematic analysis applied to the results.
Results
Generally, osteoarthritis researchers were supportive of data sharing, provided it is done responsibly and without impacting data integrity. Benefits identified included increasing typically low-powered data, the potential for machine learning opportunities, and the potential for improved patient outcomes. However, a number of challenges were identified, relating to: data security, data harmonisation, storage costs, ethical considerations and governance.
Conclusions
There is clear support for increased data sharing and partnership working in osteoarthritis research. Further investigation will be required to navigate the complex issues identified; however, it is clear that collaborative opportunities should be better facilitated and there may be innovative ways to do this. It is also clear that nomenclature within different disciplines could be better streamlined, to improve existing opportunities to harmonise data.
| Item Type: | Journal Article | ||||||||
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| Subjects: | R Medicine > R Medicine (General) R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine |
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| Divisions: | Faculty of Science, Engineering and Medicine > Engineering > WMG (Formerly the Warwick Manufacturing Group) | ||||||||
| Library of Congress Subject Headings (LCSH): | Osteoarthritis -- Research -- Data processing, Medical informatics, Medical care -- Research -- Data processing | ||||||||
| Journal or Publication Title: | Osteoarthritis and Cartilage Open | ||||||||
| Publisher: | Elsevier Ltd | ||||||||
| ISSN: | 2665-9131 | ||||||||
| Official Date: | March 2022 | ||||||||
| Dates: |
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| Volume: | 4 | ||||||||
| Number: | 1 | ||||||||
| Article Number: | 100236 | ||||||||
| DOI: | 10.1016/j.ocarto.2022.100236 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Restricted or Subscription Access | ||||||||
| Date of first compliant deposit: | 25 January 2022 | ||||||||
| Date of first compliant Open Access: | 25 January 2023 | ||||||||
| RIOXX Funder/Project Grant: |
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