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The adaptation of self-report measures to the needs of people with intellectual disabilities : a systematic review
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Kooijmans, R., Mercera, G., Langdon, Peter E. and Moonen, X. (2022) The adaptation of self-report measures to the needs of people with intellectual disabilities : a systematic review. Clinical Psychology : Science and Practice, 29 (3). pp. 250-271. doi:10.1037/cps0000058
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Official URL: https://doi.org/10.1037/cps0000058
Abstract
Persons with intellectual disabilities (ID) may have difficulties providing reliable and valid accounts of their personal experiences through self-report measures. The aim of the current study was to systematically review the peer-reviewed research literature on the adaptations needed to develop “ID-inclusive” self-report measures. A search of APA PsycInfo, PubMed, Web of Science, and Google Scholar identified 49 studies that met inclusion criteria. A GRADE-CERQual assessment was performed to determine the level of confidence in the review findings. One hundred sixty-one recommendations for the development of “ID-inclusive” self-report measures were extracted from 49 included studies. Recommendations were presented in a GRADE-CERQual Summary of Findings table, according to a five-stage model of instrument development. This review offers much-needed practical guidance for clinicians and researchers on how to develop “ID-inclusive” self-report measures. Recommendations for future research about self-report instrument development for use with people with ID are presented.
| Item Type: | Journal Article | ||||||||
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| Subjects: | B Philosophy. Psychology. Religion > BF Psychology R Medicine > RC Internal medicine |
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| Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
| Library of Congress Subject Headings (LCSH): | Intellectual disability , Developmental disabilities , Psychology, Pathological, People with mental disabilities , Clinical psychology | ||||||||
| Journal or Publication Title: | Clinical Psychology : Science and Practice | ||||||||
| Publisher: | American Psychological Association | ||||||||
| ISSN: | 0969-5893 | ||||||||
| Official Date: | 2022 | ||||||||
| Dates: |
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| Volume: | 29 | ||||||||
| Number: | 3 | ||||||||
| Page Range: | pp. 250-271 | ||||||||
| DOI: | 10.1037/cps0000058 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Reuse Statement (publisher, data, author rights): | "©American Psychological Association, 2022. This paper is not the copy of record and may not exactly replicate the authoritative document published in the APA journal. Please do not copy or cite without author's permission. The final article is available, upon publication, at: https://doi.org/10.1037/cps0000058 | ||||||||
| Access rights to Published version: | Restricted or Subscription Access |
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