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What does “good” community and public engagement look like? Developing relationships with community members in global health research

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Hickey, Gary, Porter, Katie, Tembo, Doreen, Rennard, Una, Tholanah, Martha, Beresford, Peter, Chandler, David, Chimbari, Moses, Coldham, Tina, Dikomitis, Lisa et al.
(2022) What does “good” community and public engagement look like? Developing relationships with community members in global health research. Frontiers in Public Health, 9 . 776940. doi:10.3389/fpubh.2021.776940

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Official URL: https://doi.org/10.3389/fpubh.2021.776940

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Abstract

Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does “good” CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ensure clarity of expectations of award holders, and inform effective monitoring frameworks and the development of guidance. The work reported upon here builds on existing guidance and is a first step in trying to identify the key components of what “good” CPE looks like, which can be used for all approaches to global health research and in a range of different settings and contexts. This article draws on data collected as part of an evaluation of CPE by 53 NIHR-funded award holders to provide insights on CPE practice in global health research. This data was then debated, developed and refined by a group of researchers, CPE specialists and public contributors to explore what “good” CPE looks like, and the barriers and facilitators to good CPE. A key finding was the importance, for some research, of investing in and developing long term relationships with communities, perhaps beyond the life cycle of a project; this was regarded as crucial to the development of trust, addressing power differentials and ensuring the legacy of the research was of benefit to the community.

Item Type: Journal Article
Subjects: R Medicine > R Medicine (General)
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing
Library of Congress Subject Headings (LCSH): Public health -- Citizen participation -- Great Britain, Patient participation -- Great Britain, Public health -- Research -- Great Britain, Health planning -- Great Britain
Journal or Publication Title: Frontiers in Public Health
Publisher: Frontiers
ISSN: 2296-2565
Official Date: 27 January 2022
Dates:
DateEvent
27 January 2022Published
31 December 2021Accepted
Volume: 9
Article Number: 776940
DOI: 10.3389/fpubh.2021.776940
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Open Access
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
Applied Research Collaboration West Midlands[NIHR] National Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272
Applied Research Collaboration East of England[NIHR] National Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272

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