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Factors influencing decisions about whether to participate in health research by people of diverse ethnic and cultural backgrounds : a realist review
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Hoverd, Eleanor, Hawker-Bond, George, Staniszewska, Sophie and Dale, Jeremy (2022) Factors influencing decisions about whether to participate in health research by people of diverse ethnic and cultural backgrounds : a realist review. BMJ Open, 12 (5). 694. doi:10.1136/bmjopen-2021-058380 ISSN 2044-6055.
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Official URL: https://doi.org/10.1136/bmjopen-2021-058380
Abstract
Objective: To develop and refine a programme theory that explains factors that influence decisions to take part in health research by people of diverse ethnic and cultural backgrounds.
Design: Realist review following a sequence of five steps: 1) scoping search and identification of programme theory 2) evidence searching 3) critical appraisal and data extraction 4) organisation of evidence 5) refinement of programme theory.
Eligibility: criteria Documents (including peer-reviewed articles, grey literature, websites, reports, and conference papers) either full text, or a section of relevance to the over-arching research question were included.
Data sources: EMBASE, Medline, Web of Science, Psych Info, Google and Google Scholar were searched iteratively between May through August 2020. Search strategy was refined for each database providing a broad enough review for building of programme theory.
Analysis: Data from eligible documents was extracted to build understanding of the factors that influence decision-making. Data was mapped to create a data matrix according to Context (C), Mechanism (M), Outcome (O), Configurations (C) (CMOCs) for the process of informed consent, to aid interpretation and produce final programme theory.
Results: 566 documents were screened and 71 included. Final programme theory was underpinned by CMOCs on processes influencing decisions to take part in research. Key findings indicate the type of infrastructure required, e.g., resources, services and policies, to support inclusion in health research, with a greater need to increase the social presence of researchers within communities, improve cultural competency of individuals and organisations, reduce the complexity of participant information, and provide additional resources to support adaptive processes and shared decision making.
Conclusion: The review indicates the need for a more inclusive research infrastructure that facilitates diverse participation in health research through incorporating adaptive processes that support shared decision making within the informed consent process and in the conduct of research projects.
| Item Type: | Journal Article | |||||||||||||||
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| Subjects: | R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine | |||||||||||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Medical care -- Research, Social service -- Research, Patient participation -- Research | |||||||||||||||
| Journal or Publication Title: | BMJ Open | |||||||||||||||
| Publisher: | BMJ | |||||||||||||||
| ISSN: | 2044-6055 | |||||||||||||||
| Official Date: | 2022 | |||||||||||||||
| Dates: |
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| Volume: | 12 | |||||||||||||||
| Number: | 5 | |||||||||||||||
| Article Number: | 694 | |||||||||||||||
| DOI: | 10.1136/bmjopen-2021-058380 | |||||||||||||||
| Status: | Peer Reviewed | |||||||||||||||
| Publication Status: | Published | |||||||||||||||
| Access rights to Published version: | Open Access (Creative Commons) | |||||||||||||||
| Date of first compliant deposit: | 7 April 2022 | |||||||||||||||
| Date of first compliant Open Access: | 6 June 2022 | |||||||||||||||
| RIOXX Funder/Project Grant: |
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