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Early positive approaches to support (E‐PAtS) : qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities
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Gore, Nick, Bradshaw, Jill, Hastings, Richard P., Sweeney, Joanne and Austin, Debbie (2022) Early positive approaches to support (E‐PAtS) : qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 35 (3). pp. 889-899. doi:10.1111/jar.12993 ISSN 1360-2322.
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Official URL: http://dx.doi.org/10.1111/jar.12993
Abstract
Background
Early Positive Approaches to Support (E-PAtS) is a co-produced and co-facilitated group programme that aims to provide early years support to family caregivers of children with Intellectual and Developmental Disabilities.
Method
Thirty-five caregivers who had attended E-PAtS groups took part in individual interviews or focus groups. Caregiver experiences concerning attendance of E-PAtS were explored, in relation to process variables and perceived outcomes. Interviews were thematically analysed.
Results
Three major themes were identified: our group, evolving emotions, and positive approaches. Being with and being supported by other families was very important to caregivers. Families reported increased confidence and greater realisation of the need for self-care. Children were reported to show fewer behaviours that challenge and increases in adaptive skills. Findings corresponded to mechanisms and outcomes in the E-PAtS logic model.
Conclusion
E-PAtS shows promise as one way families and children with Intellectual and Developmental Disabilities can access early years support.
Item Type: | Journal Article | ||||||||||
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Subjects: | H Social Sciences > HQ The family. Marriage. Woman H Social Sciences > HV Social pathology. Social and public welfare R Medicine > RA Public aspects of medicine R Medicine > RJ Pediatrics |
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Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||||
Library of Congress Subject Headings (LCSH): | Intellectual disability , Children with mental disabilities -- Family relationships, Developmentally disabled children -- Family relationships, Caregivers -- Services for, Mothers of children with disabilities, Fathers of children with disabilities, Parent and child -- Psychological aspects, Infants -- Mental health services, Children -- Mental health services | ||||||||||
Journal or Publication Title: | Journal of Applied Research in Intellectual Disabilities | ||||||||||
Publisher: | Wiley | ||||||||||
ISSN: | 1360-2322 | ||||||||||
Official Date: | 18 April 2022 | ||||||||||
Dates: |
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Volume: | 35 | ||||||||||
Number: | 3 | ||||||||||
Page Range: | pp. 889-899 | ||||||||||
DOI: | 10.1111/jar.12993 | ||||||||||
Status: | Peer Reviewed | ||||||||||
Publication Status: | Published | ||||||||||
Access rights to Published version: | Open Access (Creative Commons) | ||||||||||
Date of first compliant deposit: | 26 April 2022 | ||||||||||
Date of first compliant Open Access: | 27 April 2022 |
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