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Standardized outcome measures for preterm and hospitalized neonates : an ICHOM standard set
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(2022) Standardized outcome measures for preterm and hospitalized neonates : an ICHOM standard set. Neonatology, 119 (4). pp. 443-454. doi:10.1159/000522318 ISSN 1661-7800.
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WRAP-Standardized-outcome-measures-for-preterm-and-hospitalized-neonates-an-ICHOM-standard-set-Wolke-22.pdf - Accepted Version Embargoed item. Restricted access to Repository staff only - Requires a PDF viewer. Download (306Kb) |
Official URL: http://dx.doi.org/10.1159/000522318
Abstract
Introduction: Approximately, one in ten infants is born preterm or requires hospitalization at birth. These complications at birth have long-term consequences that can extend into childhood and adulthood. Timely detection of developmental delay through surveillance could enable tailored support for these babies and their families. However, the possibilities for follow-up are limited, especially in middle- and low-income countries, and the tools to do so are either not available or too expensive. A standardized and core set of outcomes for neonates, with feasible tools for evaluation and follow-up, could result in improving quality, enhance shared decision-making, and enable global benchmarking. Methods: The International Consortium for Health Outcomes Measurement (ICHOM) convened an international working group, which was comprised of 14 health-care professionals (HCP) and 6 patient representatives in the field of neonatal care. An outcome set was developed using a three-round modified Delphi process, and it was endorsed through a patient representative-validation survey and an HCP survey. Results: A literature review revealed 1,076 articles and 26 registries which were screened for meaningful outcomes, patient-reported outcome measures, clinical measures, and case mix variables. This resulted in a neonatal set with 21 core outcomes covering three domains (physical, social, and mental functioning) and 14 tools to assess these outcomes at three timepoints. Discussion: This set can be implemented globally and it will allow comparison of outcomes across different settings and countries. The transparent consensus-driven development process which involved stakeholders and professionals from all over the world ensures global relevance.
Item Type: | Journal Article | ||||||||||||
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Subjects: | R Medicine > RA Public aspects of medicine R Medicine > RG Gynecology and obstetrics R Medicine > RJ Pediatrics |
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Divisions: | Faculty of Science, Engineering and Medicine > Science > Psychology | ||||||||||||
Library of Congress Subject Headings (LCSH): | Health status indicators -- Measurement, Premature labor , Newborn infants , Premature labor -- Prevention, Newborn infants -- Hospital care | ||||||||||||
Journal or Publication Title: | Neonatology | ||||||||||||
Publisher: | Karger | ||||||||||||
ISSN: | 1661-7800 | ||||||||||||
Official Date: | July 2022 | ||||||||||||
Dates: |
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Volume: | 119 | ||||||||||||
Number: | 4 | ||||||||||||
Number of Pages: | 12 | ||||||||||||
Page Range: | pp. 443-454 | ||||||||||||
DOI: | 10.1159/000522318 | ||||||||||||
Status: | Peer Reviewed | ||||||||||||
Publication Status: | Published | ||||||||||||
Access rights to Published version: | Open Access (Creative Commons) | ||||||||||||
Copyright Holders: | © 2022 S. Karger AG, Basel | ||||||||||||
Date of first compliant deposit: | 1 June 2022 | ||||||||||||
Date of first compliant Open Access: | 1 June 2022 | ||||||||||||
RIOXX Funder/Project Grant: |
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