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Social and community inclusion outcomes for adults with autism with and without intellectual disability in Australia
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Cameron, L. A., Tonge, Bruce, Howlin, P., Einfeld, S. L., Stancliffe, R. J. and Gray, Kylie M. (2022) Social and community inclusion outcomes for adults with autism with and without intellectual disability in Australia. Journal of Intellectual Disability Research, 66 (7). pp. 655-666. doi:10.1111/jir.12953 ISSN 0964-2633.
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WRAP-Social-community-inclusion-outcomes-adults-autism-without-intellectual-disability-Australia-2022.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons Attribution Non-commercial No Derivatives 4.0. Download (580Kb) | Preview |
Official URL: https://doi.org/10.1111/jir.12953
Abstract
Abstract: Background: Research suggests that adults with autism tend to have poor outcomes. Outcomes have mostly been defined using summary outcome ratings, with less focus on specific outcomes such as employment, living situation, social satisfaction, loneliness, and friendships. This study aimed to explore social and community outcomes, including employment, education, living arrangements, friendships, and social satisfaction, for autistic adults with and without intellectual disability. Method: Eighty‐four adults with autism (mean age 34.2 years, SD = 4.5; 67% with co‐occurring intellectual disability), recruited as children and adolescents, participated in the current study. Adult social and community inclusion outcomes were explored through interview and questionnaire, both parent/carer‐report and self‐report. Results: Participants predominantly lived with family or in supported accommodation, did not pursue higher education, and mostly participated in day activity programmes. Most had limited friendships as reported by parents/carers; however, self‐report data (n = 28) indicated that adults were largely satisfied with their social relationships. Overall outcome was poor for 57%, and good/very good for 34%. Adults with intellectual disability generally had poorer outcomes. Conclusion: Autistic adults encountered numerous difficulties in leading an independent life. Adults with co‐occurring intellectual disability were most likely to experience difficulties; however, outcomes ranged from poor to very good for adults without intellectual disability. Discrepancies in parent/carer‐report and self‐reported experiences of friendships highlight the need to ensure individual experiences are captured in addition to parent/carer‐report. Appropriate resources and programmes are crucial for adults with autism to support them to have the choice to live independently.
Item Type: | Journal Article | |||||||||
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Subjects: | H Social Sciences > HM Sociology H Social Sciences > HV Social pathology. Social and public welfare R Medicine > RC Internal medicine |
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Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | |||||||||
SWORD Depositor: | Library Publications Router | |||||||||
Library of Congress Subject Headings (LCSH): | Autism , Autistic people, Autistic people -- Care, Intellectual disability , People with mental disabilities -- Services for -- Australia, Social integration -- Australia | |||||||||
Journal or Publication Title: | Journal of Intellectual Disability Research | |||||||||
Publisher: | Wiley-Blackwell Publishing Ltd. | |||||||||
ISSN: | 0964-2633 | |||||||||
Official Date: | July 2022 | |||||||||
Dates: |
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Volume: | 66 | |||||||||
Number: | 7 | |||||||||
Page Range: | pp. 655-666 | |||||||||
DOI: | 10.1111/jir.12953 | |||||||||
Status: | Peer Reviewed | |||||||||
Publication Status: | Published | |||||||||
Access rights to Published version: | Open Access (Creative Commons) | |||||||||
Date of first compliant deposit: | 11 July 2022 | |||||||||
Date of first compliant Open Access: | 11 July 2022 | |||||||||
RIOXX Funder/Project Grant: |
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