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Electronic patient reported outcomes for miscarriage research in Tommy’s net
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Khan, Mohammed Omar, Gour, Shramika, Lim Choi Keung, Sarah N., Morris, Natalie, Shields, Rebecca, Quenby, Siobhan, Dimakou, Danai B., Pickering, Oonagh, Tamblyn, Jennifer, Devall, Adam, Coomarasamy, Arri, Thornton, Danielle K., Perry, Alison and Arvanitis, Theodoros N. (2022) Electronic patient reported outcomes for miscarriage research in Tommy’s net. In: Mantas, J. and Gallos, P. and Zoulias, E. and Hasman, A. and Househ, M.S. and Diomidous, M. and Liaskos, J. and Charalampidou, M., (eds.) Advances in Informatics, Management and Technology in Healthcare. Studies in Health Technology and Informatics, 295 . IOS Press, pp. 458-461. ISBN 9781643682914
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WRAP-electronic-patient-reported-outcomes-miscarriage-research-Tommy’s-net-2022.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons: Attribution-Noncommercial 4.0. Download (288Kb) | Preview |
Official URL: https://doi.org/10.3233/SHTI220764
Abstract
The Tommy’s National Centre for Miscarriage Research aims to support the diagnosis and treatment for couples suffering from recurrent miscarriage. Tommy’s Net is an electronic data gathering tool, collecting miscarriage data and links with hospital Clinical Information System databases. The gathering of patient reported data is an important aspect, especially as data relating to pregnancy and miscarriage events are often left unreported. Methods: Both traditional paper-based and electronic patient reported outcome (ePRO) solutions have been explored to improve response rates, minimize data redundancy and reduce burden on staff. Popular ePRO survey solutions have been compared, including REDCap, SurveyMonkey, Qualtrics and LimeSurvey. Results: LimeSurvey was selected as the most appropriate solution as it provided self-hosting capability, SMS integration and ease of use. Conclusion: We have implemented a LimeSurvey based ePRO system for collection of baseline and follow-up data for participants on the Tommy’s study.
| Item Type: | Book Item | ||||||
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| Subjects: | Q Science > QA Mathematics > QA76 Electronic computers. Computer science. Computer software R Medicine > RA Public aspects of medicine R Medicine > RG Gynecology and obstetrics |
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| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School Faculty of Science, Engineering and Medicine > Engineering > WMG (Formerly the Warwick Manufacturing Group) |
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| Library of Congress Subject Headings (LCSH): | Miscarriage , Hospital records -- Data processing | ||||||
| Series Name: | Studies in Health Technology and Informatics | ||||||
| Publisher: | IOS Press | ||||||
| ISBN: | 9781643682914 | ||||||
| Book Title: | Advances in Informatics, Management and Technology in Healthcare | ||||||
| Editor: | Mantas, J. and Gallos, P. and Zoulias, E. and Hasman, A. and Househ, M.S. and Diomidous, M. and Liaskos, J. and Charalampidou, M. | ||||||
| Official Date: | 1 July 2022 | ||||||
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| Volume: | 295 | ||||||
| Page Range: | pp. 458-461 | ||||||
| DOI: | 10.3233/SHTI220764 | ||||||
| Status: | Peer Reviewed | ||||||
| Publication Status: | Published | ||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||
| Copyright Holders: | The Authors, IOS Press | ||||||
| Date of first compliant deposit: | 4 July 2022 | ||||||
| Date of first compliant Open Access: | 4 July 2022 | ||||||
| RIOXX Funder/Project Grant: |
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| Conference Paper Type: | Paper | ||||||
| Title of Event: | ICIMTH 2022, the 20th International Conference on Informatics, Management, and Technology in Healthcare | ||||||
| Type of Event: | Conference | ||||||
| Location of Event: | Athens, Greece | ||||||
| Date(s) of Event: | 1-3 July 2022 | ||||||
| Open Access Version: |
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