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Digital participation of people with profound and multiple learning disabilities during the Covid‐19 pandemic in the UK

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Caton, Sue, Bradshaw, Jill, Gillooly, Amanda, Hatton, Chris, Flynn, Samantha, Oloidi, Edward, Jahoda, Andrew, Maguire, Roseann, Marriott, Anna, Mulhall, Peter, Taggart, Laurence, Todd, Stuart, Abbott, David, Beyer, Stephen, Gore, Nick, Heslop, Pauline, Scior, Katrina and Hastings, Richard P. (2022) Digital participation of people with profound and multiple learning disabilities during the Covid‐19 pandemic in the UK. British Journal of Learning Disabilities . doi:10.1111/bld.12501 ISSN 1354-4187. (In Press)

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Official URL: https://doi.org/10.1111/bld.12501

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Abstract

Background: During the Covid‐19 pandemic, there has been a worldwide increase in the use of digital technology. Many people with learning disabilities have learned new digital skills, taken part in online activities, and kept in touch with family and friends using video calls. However, the experiences of digital participation or nonparticipation for the people with profound and multiple learning disabilities (PMLD) is less understood. Method: Between December 2020 and August 2021, family carers or paid support workers of adults with PMLD completed an online survey around the experiences of the person they care for during the Covid‐19 pandemic, including questions on Internet use. We draw on the findings of this UK‐wide study to explore the digital participation of the people with PMLD during the pandemic. Findings: Around half of the people with PMLD had Internet access at home. Around half of the participants interacted with others on video calls like Facetime or Zoom and most commonly used the Internet for being with family and friends online and streaming TV and films. In the event of another lockdown, 27.5% of the people supporting someone with PMLD said they would like support with technology to make seeing friends and family easier. For some the people, digital participation during the pandemic was not beneficial enough to want to continue when restrictions eased. For others, the new online experiences had the potential to be developed in their postpandemic lives. Conclusion: Around half of the people surveyed participated in digital activities during Covid‐19. Future attention is needed to afford more people opportunities, and respond to access barriers experienced for the people with PMLD and those that support them.

Item Type: Journal Article
Subjects: H Social Sciences > HV Social pathology. Social and public welfare
R Medicine > RA Public aspects of medicine
Divisions: Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
SWORD Depositor: Library Publications Router
Library of Congress Subject Headings (LCSH): COVID-19 (Disease) -- Social aspects, COVID-19 Pandemic, 2020- -- Social aspects, Learning disabilities -- Research, People with mental disabilities, COVID-19 Pandemic, 2020- -- Technological innovations
Journal or Publication Title: British Journal of Learning Disabilities
Publisher: Wiley
ISSN: 1354-4187
Official Date: 29 August 2022
Dates:
DateEvent
29 August 2022Published
15 August 2022Accepted
DOI: 10.1111/bld.12501
Status: Peer Reviewed
Publication Status: In Press
Access rights to Published version: Open Access (Creative Commons)
Date of first compliant deposit: 17 October 2022
Date of first compliant Open Access: 18 October 2022
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
UNSPECIFIEDUK Research and Innovationhttp://dx.doi.org/10.13039/100014013
UNSPECIFIED[NIHR] National Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272

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