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Mind the evidence gap : the use of patient-based evidence to create “complete HTA” in the twenty-first century

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Staniszewska, Sophie and Söderholm Werkö, Sophie (2021) Mind the evidence gap : the use of patient-based evidence to create “complete HTA” in the twenty-first century. International Journal of Technology Assessment in Health Care, 37 (1). e46. doi:10.1017/S026646232100012X ISSN 0266-4623.

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Official URL: http://dx.doi.org/10.1017/S026646232100012X

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Abstract

The aim of this paper is to review the concept of patient-based evidence in health technology assessment (HTA), drawing on philosophical ideas of knowledge in order to judge whether current approaches to the use of evidence for HTA are complete. We draw on a number of key sources, including key papers and book chapters, discussion forums, agency reports, and conference presentations. We develop the potential dimensions of patient-based evidence, describe its key attributes, and consider its future development. Patient-based evidence has the potential to be a key concept in HTA, comprised of a series of related elements of importance to patients. We recognize that we raise more questions than can be answered, but as an emerging concept, recognition and understanding of patient-based evidence is still developing. The concepts and methods that support its application in HTA require urgent development. We conclude that clinical and economic forms of evidence are not enough for HTA. For HTA to be complete, we need to consider all relevant aspects of the phenomena, including patient-based evidence. There is now an urgent need for the global research and HTA community to work together to realize the full potential of patient-based evidence through conceptual and methodological development and wider recognition. We advocate that a task force be set up to address these urgent issues.

Item Type: Journal Article
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing
Journal or Publication Title: International Journal of Technology Assessment in Health Care
Publisher: Cambridge University Press
ISSN: 0266-4623
Official Date: 22 March 2021
Dates:
DateEvent
22 March 2021Published
26 January 2021Accepted
26 June 2020Submitted
Volume: 37
Number: 1
Number of Pages: 7
Article Number: e46
DOI: 10.1017/S026646232100012X
Status: Peer Reviewed
Publication Status: Published
Reuse Statement (publisher, data, author rights): This article has been published in a revised form in International Journal of Technology Assessment in Health Care http://dx.doi.org/10.1017/S026646232100012X. This version is published under a Creative Commons CC-BY-NC-ND. No commercial re-distribution or re-use allowed. Derivative works cannot be distributed. © The Author(s), 2021. Published by Cambridge University Press.
Access rights to Published version: Free Access (unspecified licence, 'bronze OA')
Copyright Holders: Copyright © The Author(s), 2021. Published by Cambridge University Press
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
UNSPECIFIED[NIHR] National Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272

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