Soper, Paul, Stewart, Alex G., Nathan, Rajan, Nall-Evans, Sharleen, Mills, Rachel, Michelet, Felix and Jaydeokar, Sujeet (2022) Do demographic, and clinical characteristics influence meeting NICE quality standards for young people transitioning to adult intellectual disability services? Advances in Mental Health and Intellectual Disabilities . doi:10.1108/AMHID-12-2021-0051 ISSN 2044-1282. (In Press)

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Abstract

Purpose
This study aims to evaluate the quality of transition from child and adolescent services to adult intellectual disability services, using the relevant National Institute for Health and Care Excellence (NICE) standard (QS140). In addition, this study also identifies any differences in transition quality between those young people with intellectual disability with and without autism.

Design/methodology/approach
Using routinely collected clinical data, this study identifies demographic and clinical characteristics of, and contextual complexities experienced by, young people in transition between 2017 and 2020. Compliance with the quality standard was assessed by applying dedicated search terms to the records.

Findings
The study highlighted poor recording of data with only 22% of 306 eligible cases having sufficient data recorded to determine compliance with the NICE quality standard. Available data indicated poor compliance with the standard. Child and adolescent mental health services, generally, did not record mental health co-morbidities. Compliance with three out of the five quality statements was higher for autistic young people, but this only reached statistical significance for one of those statements (i.e. having a named worker, p = 0.02).

Research limitations/implications
Missing data included basic clinical characteristics such as the level of intellectual disability and the presence of autism. This required adult services to duplicate assessment procedures that potentially delayed clinical outcomes. This study highlights that poor compliance may reflect inaccurate recording that needs addressing through training and introduction of shared protocols.

Originality/value
To the best of the authors’ knowledge, this is the first study to examine the transition process between children’s and adults’ intellectual disability health services using NICE quality standard 140.

Item Type:	Journal Article
Subjects:	R Medicine > RC Internal medicine
Divisions:	Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH):	Learning disabilities -- Research, Learning disabled -- Mental health services -- Great Britain, Attention-deficit hyperactivity disorder, Autism, Medical care -- Standards -- Great Britain, Medical care -- Quality control -- Evaluation, Youth -- Mental health services
Journal or Publication Title:	Advances in Mental Health and Intellectual Disabilities
Publisher:	Emerald
ISSN:	2044-1282
Official Date:	2022
Dates:	Date Event 2022 Published 19 August 2022 Available 9 May 2022 Accepted
DOI:	10.1108/AMHID-12-2021-0051
Status:	Peer Reviewed
Publication Status:	In Press
Access rights to Published version:	Open Access (Creative Commons)
Copyright Holders:	Copyright © 2022, Paul Soper, Alex G. Stewart, Rajan Nathan, Sharleen Nall-Evans, Rachel Mills, Felix Michelet and Sujeet Jaydeokar.
Date of first compliant deposit:	2 September 2022
Date of first compliant Open Access:	2 September 2022

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