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Expressivist objections to prenatal screening and testing : perceptions of people living with disability
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Boardman, Felicity K. and Thomas, Gareth (2023) Expressivist objections to prenatal screening and testing : perceptions of people living with disability. Sociology of Health and Illness, 45 (6). pp. 1223-1241. doi:10.1111/1467-9566.13559 ISSN 1467-9566.
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Official URL: https://doi.org/10.1111/1467-9566.13559
Abstract
The ‘expressivist objection’ (EO) refers to the notion that using reproductive (genetic) technologies to prevent the birth of future would-be disabled people contain, and express, a negative valuation of life with disability. Whilst the EO has received increased attention in recent years in line with rapid technological and genomic developments, there remains scant research on how EO concerns are experienced and expressed by disabled people and their families, especially within and between impairment groups. Bringing together two studies—one with adults and family members living with genetic conditions (n = 62) and one with parents of children with Down’s syndrome (n = 22)—we argue that disabled people and their families variously embrace, reject or rework the EO across contexts, and yet also frequently situate it within broad support for reproductive technologies. We present three key factors that mediate responses to the EO: (1) the nature of impairment and its integration within identity; (2) social and cultural contexts relating to disability and (3) the (individual and collective) imagined futures of disabled people. In so doing, we blend the conceptual architecture of medical sociology and disability studies, arguing that this allows us to accurately illuminate the nuanced responses of disabled people and their families.
| Item Type: | Journal Article | |||||||||
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| Subjects: | H Social Sciences > HV Social pathology. Social and public welfare R Medicine > RG Gynecology and obstetrics |
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| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Prenatal diagnosis -- Research, Disabilities, Prenatal diagnosis -- Moral and ethical aspects, Genetic screening, Disability studies | |||||||||
| Journal or Publication Title: | Sociology of Health and Illness | |||||||||
| Publisher: | Wiley-Blackwell Publishing Ltd. | |||||||||
| ISSN: | 1467-9566 | |||||||||
| Official Date: | July 2023 | |||||||||
| Dates: |
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| Volume: | 45 | |||||||||
| Number: | 6 | |||||||||
| Page Range: | pp. 1223-1241 | |||||||||
| DOI: | 10.1111/1467-9566.13559 | |||||||||
| Status: | Peer Reviewed | |||||||||
| Publication Status: | Published | |||||||||
| Reuse Statement (publisher, data, author rights): | This is the peer reviewed version of the following article: Boardman, F., & Thomas, G. (2022). Expressivist objections to prenatal screening and testing: Perceptions of people living with disability. Sociology of Health & Illness, 1– 19. https://doi.org/10.1111/1467-9566.13559, which has been published in final form at https://doi.org/10.1111/1467-9566.13559. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited | |||||||||
| Access rights to Published version: | Restricted or Subscription Access | |||||||||
| Date of first compliant deposit: | 5 September 2022 | |||||||||
| Date of first compliant Open Access: | 3 October 2022 | |||||||||
| RIOXX Funder/Project Grant: |
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