The Library
Development of the motor neuron disease carer questionnaire
Tools
Tools
Tools
Mockford, Carole, Jenkinson, Crispin and Fitzpatrick, Raymond (2009) Development of the motor neuron disease carer questionnaire. Amyotrophic Lateral Sclerosis, Vol.10 (No.5-6). pp. 463-469. doi:10.3109/17482960802455408
Research output not available from this repository, contact author.
Official URL: http://dx.doi.org/10.3109/17482960802455408
Abstract
Our objective was to develop a validated questionnaire that can measure the extent to which dimensions of caring affect the health of carers of patients with motor neuron disease. An initial 190-item questionnaire was developed from in-depth interviews, focus groups and two pilot studies with carers. Factor analysis was applied to the data obtained from a large survey in the UK that identified the underlying dimensions of caring. The newly formed scales were tested for reliability using Cronbach's a, and for construct validity. The SF36-v2 was the benchmark instrument on which correlations were made to ascertain the relationship with carers' health. A 34-item instrument was developed which has demonstrated promising evidence of internal reliability and validity for six scales: emotional well-being, physical well- being, self care, disturbed sleep, carers' support needs and statutory services. High correlations were found with the Mental Component Score summary scale of the SF-36v2 (0.40-0.66). The development and testing of the MNDCQ indicates that as the carers' score on the MNDCQ increases, suggesting a higher level of burden, they are more likely to report poor health. Further longitudinal studies are needed to further test the instruments' ability to detect change over time.
| Item Type: | Journal Article | ||||
|---|---|---|---|---|---|
| Subjects: | R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry | ||||
| Divisions: | Faculty of Social Sciences > School of Health and Social Studies | ||||
| Journal or Publication Title: | Amyotrophic Lateral Sclerosis | ||||
| Publisher: | Informa Healthcare | ||||
| ISSN: | 1748-2968 | ||||
| Official Date: | 2009 | ||||
| Dates: |
|
||||
| Volume: | Vol.10 | ||||
| Number: | No.5-6 | ||||
| Number of Pages: | 7 | ||||
| Page Range: | pp. 463-469 | ||||
| DOI: | 10.3109/17482960802455408 | ||||
| Status: | Peer Reviewed | ||||
| Publication Status: | Published | ||||
| Access rights to Published version: | Restricted or Subscription Access | ||||
| Funder: | Motor Neurone Disease Association, University of Oxford, MNDA |
Data sourced from Thomson Reuters' Web of Knowledge
Request changes or add full text files to a record
Repository staff actions (login required)
 |
View Item |
