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Role and response of primary healthcare services in community end-of-life care during COVID-19 : qualitative study and recommendations for primary palliative care delivery
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Turner, Nicola, Wahid, Aysha, Oliver, Phillip, Gardiner, Clare, Chapman, Helen, Khan, Dena, Boyd, Kirsty, Dale, Jeremy, Barclay, Stephen, Mayland, Catriona R. and Mitchell, Sarah J. (2023) Role and response of primary healthcare services in community end-of-life care during COVID-19 : qualitative study and recommendations for primary palliative care delivery. Palliative Medicine, 37 (2). 235 -243. doi:10.1177/02692163221140435 ISSN 0269-2163.
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Official URL: https://doi.org/10.1177/02692163221140435
Abstract
Background: The need for end-of-life care in the community increased significantly during the COVID-19 pandemic. Primary care services, including general practitioners and community nurses, had a critical role in providing such care, rapidly changing their working practices to meet demand. Little is known about primary care responses to a major change in place of care towards the end of life, or the implications for future end-of-life care services. Aim: To gather general practitioner and community nurse perspectives on factors that facilitated community end-of-life care during the COVID-19 pandemic, and to use this to develop recommendations to improve future delivery of end-of-life care. Design: Qualitative interview study with thematic analysis, followed by refinement of themes and recommendations in consultation with an expert advisory group. Participants: General practitioners ( n = 8) and community nurses ( n = 17) working in primary care in the UK. Results: General practitioner and community nurse perspectives on factors critical to sustaining community end-of-life care were identified under three themes: (1) partnership working is key, (2) care planning for end-of-life needs improvement, and (3) importance of the physical presence of primary care professionals. Drawing on participants’ experiences and behaviour change theory, recommendations are proposed to improve end-of-life care in primary care. Conclusions: To sustain and embed positive change, an increased policy focus on primary care in end-of-life care is required. Targeted interventions developed during COVID-19, including online team meetings and education, new prescribing systems and unified guidance, could increase capacity and capability of the primary care workforce to deliver community end-of-life care.
Item Type: | Journal Article | |||||||||
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Subjects: | R Medicine > RA Public aspects of medicine R Medicine > RC Internal medicine R Medicine > RT Nursing |
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Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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SWORD Depositor: | Library Publications Router | |||||||||
Library of Congress Subject Headings (LCSH): | Palliative treatment, Terminal care, COVID-19 (Disease), Primary health care, Physicians (General practice), Nursing, Qualitative research | |||||||||
Journal or Publication Title: | Palliative Medicine | |||||||||
Publisher: | Sage | |||||||||
ISSN: | 0269-2163 | |||||||||
Official Date: | February 2023 | |||||||||
Dates: |
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Volume: | 37 | |||||||||
Number: | 2 | |||||||||
Page Range: | 235 -243 | |||||||||
DOI: | 10.1177/02692163221140435 | |||||||||
Status: | Peer Reviewed | |||||||||
Publication Status: | Published | |||||||||
Access rights to Published version: | Open Access (Creative Commons) | |||||||||
Date of first compliant deposit: | 10 January 2023 | |||||||||
Date of first compliant Open Access: | 10 January 2023 | |||||||||
RIOXX Funder/Project Grant: |
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