Tritter, Jonathan Q., 1965-. (2009) Revolution or evolution : the challenges of conceptualizing patient and public involvement in a consumerist world. Health Expectations, Vol.12 (No.3). pp. 275-287. ISSN 1369-6513

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Abstract

Background Changing the relationship between citizens and the state is at the heart of current policy reforms. Across England and the developed world, from Oslo to Ontario, Newcastle to Newquay, giving the public a more direct say in shaping the organization and delivery of healthcare services is central to the current health reform agenda. Realigning public services around those they serve, based on evidence from service user's experiences, and designed with and by the people rather than simply on their behalf, is challenging the dominance of managerialism, marketization and bureaucratic expertise. Despite this attention there is limited conceptual and theoretical work to underpin policy and practice. Objective This article proposes a conceptual framework for patient and public involvement (PPI) and goes on to explore the different justifications for involvement and the implications of a rights-based rather than a regulatory approach. These issues are highlighted through exploring the particular evolution of English health policy in relation to PPI on the one hand and patient choice on the other before turning to similar patterns apparent in the United States and more broadly. Conclusions A framework for conceptualizing PPI is presented that differentiates between the different types and aims of involvement and their potential impact. Approaches to involvement are different in those countries that adopt a rights-based rather than a regulatory approach. I conclude with a discussion of the tension and interaction apparent in the globalization of both involvement and patient choice in both policy and practice.

Item Type:	Journal Article
Subjects:	H Social Sciences > HV Social pathology. Social and public welfare R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Divisions:	Faculty of Social Sciences > Warwick Business School > International Centre for Governance & Public Management Faculty of Social Sciences > Warwick Business School
Library of Congress Subject Headings (LCSH):	Medical policy, National health services-- Great Britain, Globalization, Patient participation
Journal or Publication Title:	Health Expectations
Publisher:	Wiley-Blackwell Publishing, Inc
ISSN:	1369-6513
Date:	September 2009
Volume:	Vol.12
Number:	No.3
Number of Pages:	13
Page Range:	pp. 275-287
Identification Number:	10.1111/j.1369-7625.2009.00564.x
Status:	Peer Reviewed
Publication Status:	Published
Access rights to Published version:	Restricted or Subscription Access
References:	1 Arnstein S.Aladder of citizen participation. Journal of the American Institute of Planners, 1969; 35: 216–224. 2 Wilcox D. The Guide to Effective Participation. London: Joseph Rowntree Foundation, 1994. 3 Burns D, Hamilton R, Hogget P. The Politics of Decentralisation. Basingstoke: MacMillan, 1994. 4 Choguill G. A ladder of community participation for underdeveloped countries. Habitat International, 1996; 20: 431–444. 5 Tritter J, McCallum A. The snakes and ladders of user involvement: moving beyond Arnstein. Health Policy, 2006; 76: 156–168. 6 Harrison S, Dowswell G, Milewa T. Guest editorial: public and user involvement in the UK National Health Service. Health & Social Care in the Community, 2002; 10: 63–66. 7 Somerset Health and Social Care NHS Trust. Available at: http://www.somerset.nhs.uk/news_info/ involvement/index.html, accessed on 5 July 2008. 8 Davies C, Wetherell M, Barnett E. Citizens at the Centre: Deliberative Participation in Healthcare Decisions. Bristol: Policy Press, 2006. 9 London Ambulance Service. Patient and Public Involvement (PPI) – The LAS Approach. 2004; Available at: http://www.londonambulance.nhs.uk/ talkingtous/ppi/media/PPI%20strategy.pdf, accessed on 5 July 2008. 10 Avon, Somerset and Wiltshire Cancer Services. Annual Report 2006. Available at: http://www. aswcs.nhs.uk/AnnualReport.pdf, accessed on 5 July 2008. 11 Oliver S, Rees R, Clarke-Jones L et al. A multidimensional conceptual framework for analysing public involvement in health services research. Health Expectations, 2008; 11: 72–84. 12 WHO Regional Office for Europe. Declaration on the Promotion of Patients Rights in Europe. Copenhagen: WHO, 1994. 13 Council of Europe. Recommendation of the Committee of Ministers of the Council of Europe on the Development of Structures for Citizen and Patient Participation in the Decision-Making Process Affecting Health Care. Strasbourg: Council of Europe, 2000. 14 Rutter D, Manley C, Weaver T, Crawford MJ, Fulop N. Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London Social Science and Medicine, 2004; 58: 1973–1984. 15 Crawford M, Rutter D, Manley C et al. Systematic review of involving patients in the planning and development of health care. British Medical Journal, 2002; 325: 1263–1267. 16 Richardson A, Sitzia J, Cotterll P. Working the System. Achieving change through partnership working: an evaluation of cancer partnership groups. Health Expectations, 2005; 8: 210–220. 17 Gagliardi A, Lemieux-Charles L, Brown A, Sullivan T, Goel V. Barriers to patient involvement in health service planning and evaluation: an exploratory study. Patient Education and Counseling, 2008; 70: 234–241. 18 Daykin N, Sanidas M, Tritter J, Rimmer J, Evans S. Developing user involvement in a UK cancer network: professionals and users perspectives. Critical Public Health, 2004; 14: 277–294. 19 Simpson E, House A. Involving users in the delivery and evaluation of mental health services: systematic review. British Medical Journal, 2002; 325: 1265–1270. 20 Simces and Associates. Exploring the Link between Public Involvement ⁄ Citizen Engagement and Quality Health Care: A Review and Analysis of the Current Literature. Ottawa: Health Canada, Health and Human Resources Division, 2003: 4. 21 Crawford M, Rutter D, Thelwall S. User Involvement in Change Management: A Review of the Literature. London: National Co-ordinating Centre for Service Delivery and Organisation, 2003. 22 Tritter J. Getting to know myself. Changing needs and gaining knowledge among people with cancer. In Denny E, Earle S (eds) Long Term Conditions and Nursing Practice. Basingstoke: Palgrave, 2008, 151–168. 23 Williams S. Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health and Illness, 2000; 22: 40–67. 24 Doel M, Carroll C, Chambers E et al. Developing Measures for Effective Service User and Carer Participation. London: Social Care Institute for Excellence, 2007. 25 Welsh Assembly Government and OPM. Signposts Two: Putting Public and Patient Involvement into Practice in Wales. Cardiff: Welsh Assembly, 2003. 26 Surrey and Sussex Strategic Health Authority. PPI Self-Assessment Framework. Redhill: Surrey and Sussex Strategic Health Authority, 2005. 27 Healthcare Commission. The Annual Health Check 2008 ⁄ 09: Assessing and Rating the NHS. London: Healthcare Commission, 2008. Available at: http:// www.healthcarecommission.org.uk/serviceproviderinformation/ annualhealthcheck.cfm, accessed on 21 July 2008. 28 Irvine D. The Doctors Tale: Professionalism and Public Trust. Oxford: Radcliffe Publishing, 2003. 29 Croft S, Beresford P. User involvement, citizenship and social policy. Critical Social Policy, 1993; 9: 5–18. 30 Feldberg G, Vipond R. The virus of consumerism. In: Drache D, Sullivan T (eds) Health Reform: Public Success Private Failure. London: Routledge, 1999, 448–464. 31 Ignatieff M. The myth of citizenship. In: Beiner R. (ed.) Theorizing Citizenship. Albany: SUNY Press, 1995; 71: 53–78. 32 Klein R. The New Politics of the NHS, 4th edn. Harlow: Pearson, 2001. 33 Dale J, Harbinder S, Lall R, Glucksman E. The patient, the doctor and the emergency department: a cross section study of patient-centeredness in 1995 and 2005. Patient Education and Counselling, 2008; 72: 320–329. 34 Stewart M. Towards a global definition of patient centred care: The patient should be the judge of patient centred care. British Medical Journal, 2001; 322: 444–445. 35 Marinker M (ed.). Sense & Sensibility in Healthcare. London: BMJ Publishing Group, 1996: 13. 36 Department of Health. Patient and Public Involvement in the New NHS. London: Department of Health, 1999. 37 Department of Health. The NHS Plan: A Plan for Investment, A Plan for Reform. London: Department of Health, 2000. 38 Department of Health. Building on the Best; Choice, Responsiveness and Equity in the NHS (Cm 6268). London: Department of Health, 2003. 39 Department of Health. The NHS Improvement Plan: Putting People at the Heart of Public Services (Cm 6268). London: Department of Health, 2004. 40 Department of Health. Creating a Patient-Led NHS: Delivering the NHS Improvement Plan. London: Department of Health, 2005. 41 Department of Health. Government Response to the Consultation Exercise about the Future Support Arrangements for Patient and Public Involvement in Health. London: Department of Health, 2005. 42 Department of Health. Our Health, Our Care, Our Say: A New Direction for Community Services. London: Department of Health, 2006. 43 Vos P. Health and Healthcare in the Netherlands. Maarssen: Elsevier gezonheidszorg, 2002. 44 Fotaki M. Patient choice in healthcare in England and Sweden: From quasi-market and back to market? A comparative analysis of failure in unlearning. Public Administration, 2007; 85: 1059–1075. 45 Bergmark A ˚ . Market reforms in Swedish health care: normative reorientation and welfare state sustainability. Journal of Medicine and Philosophy, 2008; 33: 241–261. 46 Tritter JQ, Koivusalo M, Ollila E, Dorfman P. Globalisation, Markets and Healthcare Policy: Redrawing the Patient as Consumer. London: Routledge, 2009. 47 Romanow R. Building on Values: The Future of Health Care in Canada, Final Report. Ottawa: Royal Commission on the Future of Health Care in Canada, 2002. 48 Commission of the European Communities. Proposal for a Directive of the European Parliament and of the Council on the Application of Patients Rights in Cross Border Healthcare, 2008 ⁄ 0142. Brussels: Commission of the European Communities, 2008. Available at: http://ec.europa.eu/health/ph_overview/co_ operation/healthcare/docs/COM_en.pdf, accessed on 6 July 2008. 49 American Medical Association. New AMA Guidelines on Medical Tourism. 2008. Available at: http:// www.ama-assn.org/ama1/pub/upload/mm/31/ medicaltourism.pdf, accessed on 23 July 2008. 50 United Nations Economic Commission for Europe. Convention on Access to Information, Public Participation in Decision-Making and Access to Justice in Environmental Matters. Aarhus: UNECE, 1998. 51 Lewis M. Governing Foundation Trusts: A New Era for Public Accountability. London: Kings Fund, 2005. 52 House of Commons Health Committee. Foundation Trusts and Monitor. London: House of Commons, 2008. 53 Hogg C. Citizens, Consumers and the NHS: Capturing Voices. London: Palgrave Macmillan, 2008. 54 House of Commons Health Committee. Patient and Public Involvement in the NHS. London: House of Commons, 2008. 55 Department of Health. Health Bill 2009. http:// www.dh.gov.uk/en/Publicationsandstatistics/ Legislation/Actsandbills/DH_093280, accessed on 17 July 2009. 56 Department of Health. Department of Health: Departmental Report 2008. London: Department of Health, 2008. 57 NHS Confederation Key Statistics in the NHS. 2008. Available at: http://www.nhsconfed.org/issues/ about-1857.cfm, accessed on 15 July 2008. 58 Koivusalo M, Tritter J. The Globalisation of Health Care Reforms: The Impact and Response to Commercialisation in Different National Contexts. 16th International Sociological Association World Congress of Sociology, Durban, South Africa, 23–29 July 2006. 59 U.S. Department of Health & Human Services. HealthReform.Gov. 2009. http://www.healthreform. gov, accessed on 17 July 2009. 60 Valentine N, Darby C, Bonsel GJ. Which aspects of non-clinical quality of care are most important? Results from WHOs general population surveys of ‘‘health systems responsiveness’’ in 41 countries Social Science and Medicine, 2008; 66: 1939– 1950. 61 Ollila E, Koivusalo M. The World Health Report 2000: the World Health Organization health policy steering off course – changed values, poor evidence, and lack of accountability. International Journal of Health Services, 2002; 32: 503–514. 62 Docteur E, Oxley H. Health Care Systems: Lessons from the Reform Experience. Paris: OECD ⁄ ELSA ⁄WD ⁄ HEA, 2003. 63 Henderson S, Petersen A (eds). Consuming Health: The Commodification of Health Care. Routledge: London and New York, 2002; 3. 64 Krugman P. Blue double cross. The New York Times, 21 May 2009.
URI:	http://wrap.warwick.ac.uk/id/eprint/17390

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