1 Arnstein S.Aladder of citizen participation. Journal of
the American Institute of Planners, 1969; 35: 216–224.
2 Wilcox D. The Guide to Effective Participation.
London: Joseph Rowntree Foundation, 1994.
3 Burns D, Hamilton R, Hogget P. The Politics of
Decentralisation. Basingstoke: MacMillan, 1994.
4 Choguill G. A ladder of community participation for
underdeveloped countries. Habitat International,
1996; 20: 431–444.
5 Tritter J, McCallum A. The snakes and ladders of
user involvement: moving beyond Arnstein. Health
Policy, 2006; 76: 156–168.
6 Harrison S, Dowswell G, Milewa T. Guest editorial:
public and user involvement in the UK National
Health Service. Health & Social Care in the Community,
2002; 10: 63–66.
7 Somerset Health and Social Care NHS Trust. Available
at: http://www.somerset.nhs.uk/news_info/
involvement/index.html, accessed on 5 July 2008.
8 Davies C, Wetherell M, Barnett E. Citizens at the
Centre: Deliberative Participation in Healthcare
Decisions. Bristol: Policy Press, 2006.
9 London Ambulance Service. Patient and Public
Involvement (PPI) – The LAS Approach. 2004;
Available at: http://www.londonambulance.nhs.uk/
talkingtous/ppi/media/PPI%20strategy.pdf, accessed
on 5 July 2008.
10 Avon, Somerset and Wiltshire Cancer Services.
Annual Report 2006. Available at: http://www.
aswcs.nhs.uk/AnnualReport.pdf, accessed on 5 July
2008.
11 Oliver S, Rees R, Clarke-Jones L et al. A multidimensional
conceptual framework for analysing public
involvement in health services research. Health
Expectations, 2008; 11: 72–84.
12 WHO Regional Office for Europe. Declaration on the
Promotion of Patients Rights in Europe. Copenhagen:
WHO, 1994.
13 Council of Europe. Recommendation of the Committee
of Ministers of the Council of Europe on the
Development of Structures for Citizen and Patient
Participation in the Decision-Making Process Affecting
Health Care. Strasbourg: Council of Europe,
2000.
14 Rutter D, Manley C, Weaver T, Crawford MJ, Fulop
N. Patients or partners? Case studies of user
involvement in the planning and delivery of adult
mental health services in London Social Science and
Medicine, 2004; 58: 1973–1984.
15 Crawford M, Rutter D, Manley C et al. Systematic
review of involving patients in the planning and
development of health care. British Medical Journal,
2002; 325: 1263–1267.
16 Richardson A, Sitzia J, Cotterll P. Working the
System. Achieving change through partnership
working: an evaluation of cancer
partnership groups. Health Expectations, 2005; 8:
210–220.
17 Gagliardi A, Lemieux-Charles L, Brown A, Sullivan
T, Goel V. Barriers to patient involvement in health
service planning and evaluation: an exploratory
study. Patient Education and Counseling, 2008; 70:
234–241.
18 Daykin N, Sanidas M, Tritter J, Rimmer J, Evans S.
Developing user involvement in a UK cancer network:
professionals and users perspectives. Critical
Public Health, 2004; 14: 277–294.
19 Simpson E, House A. Involving users in the delivery
and evaluation of mental health services: systematic
review. British Medical Journal, 2002; 325: 1265–1270.
20 Simces and Associates. Exploring the Link between
Public Involvement ⁄ Citizen Engagement and Quality
Health Care: A Review and Analysis of the Current
Literature. Ottawa: Health Canada, Health and
Human Resources Division, 2003: 4.
21 Crawford M, Rutter D, Thelwall S. User Involvement
in Change Management: A Review of the Literature.
London: National Co-ordinating Centre for Service
Delivery and Organisation, 2003.
22 Tritter J. Getting to know myself. Changing needs
and gaining knowledge among people with cancer. In
Denny E, Earle S (eds) Long Term Conditions and
Nursing Practice. Basingstoke: Palgrave, 2008,
151–168.
23 Williams S. Chronic illness as biographical disruption
or biographical disruption as chronic illness? Reflections
on a core concept. Sociology of Health and
Illness, 2000; 22: 40–67.
24 Doel M, Carroll C, Chambers E et al. Developing
Measures for Effective Service User and Carer Participation.
London: Social Care Institute for Excellence,
2007.
25 Welsh Assembly Government and OPM. Signposts
Two: Putting Public and Patient Involvement into
Practice in Wales. Cardiff: Welsh Assembly, 2003.
26 Surrey and Sussex Strategic Health Authority. PPI
Self-Assessment Framework. Redhill: Surrey and
Sussex Strategic Health Authority, 2005.
27 Healthcare Commission. The Annual Health Check
2008 ⁄ 09: Assessing and Rating the NHS. London:
Healthcare Commission, 2008. Available at: http://
www.healthcarecommission.org.uk/serviceproviderinformation/
annualhealthcheck.cfm, accessed on 21
July 2008.
28 Irvine D. The Doctors Tale: Professionalism and
Public Trust. Oxford: Radcliffe Publishing, 2003.
29 Croft S, Beresford P. User involvement, citizenship
and social policy. Critical Social Policy, 1993; 9:
5–18.
30 Feldberg G, Vipond R. The virus of consumerism. In:
Drache D, Sullivan T (eds) Health Reform: Public
Success Private Failure. London: Routledge, 1999,
448–464.
31 Ignatieff M. The myth of citizenship. In: Beiner R.
(ed.) Theorizing Citizenship. Albany: SUNY Press,
1995; 71: 53–78.
32 Klein R. The New Politics of the NHS, 4th edn.
Harlow: Pearson, 2001.
33 Dale J, Harbinder S, Lall R, Glucksman E. The patient,
the doctor and the emergency department: a
cross section study of patient-centeredness in 1995
and 2005. Patient Education and Counselling, 2008;
72: 320–329.
34 Stewart M. Towards a global definition of patient
centred care: The patient should be the judge of
patient centred care. British Medical Journal, 2001;
322: 444–445.
35 Marinker M (ed.). Sense & Sensibility in Healthcare.
London: BMJ Publishing Group, 1996: 13.
36 Department of Health. Patient and Public Involvement
in the New NHS. London: Department of Health,
1999.
37 Department of Health. The NHS Plan: A Plan for
Investment, A Plan for Reform. London: Department
of Health, 2000.
38 Department of Health. Building on the Best; Choice,
Responsiveness and Equity in the NHS (Cm 6268).
London: Department of Health, 2003.
39 Department of Health. The NHS Improvement Plan:
Putting People at the Heart of Public Services (Cm
6268). London: Department of Health, 2004.
40 Department of Health. Creating a Patient-Led NHS:
Delivering the NHS Improvement Plan. London:
Department of Health, 2005.
41 Department of Health. Government Response to the
Consultation Exercise about the Future Support
Arrangements for Patient and Public Involvement in
Health. London: Department of Health, 2005.
42 Department of Health. Our Health, Our Care, Our
Say: A New Direction for Community Services.
London: Department of Health, 2006.
43 Vos P. Health and Healthcare in the Netherlands.
Maarssen: Elsevier gezonheidszorg, 2002.
44 Fotaki M. Patient choice in healthcare in England
and Sweden: From quasi-market and back to market?
A comparative analysis of failure in unlearning.
Public Administration, 2007; 85: 1059–1075.
45 Bergmark A ˚ . Market reforms in Swedish health care:
normative reorientation and welfare state sustainability.
Journal of Medicine and Philosophy, 2008; 33:
241–261.
46 Tritter JQ, Koivusalo M, Ollila E, Dorfman P.
Globalisation, Markets and Healthcare Policy:
Redrawing the Patient as Consumer. London:
Routledge, 2009.
47 Romanow R. Building on Values: The Future of
Health Care in Canada, Final Report. Ottawa: Royal
Commission on the Future of Health Care in Canada,
2002.
48 Commission of the European Communities. Proposal
for a Directive of the European Parliament and of the
Council on the Application of Patients Rights in Cross
Border Healthcare, 2008 ⁄ 0142. Brussels: Commission
of the European Communities, 2008. Available at:
http://ec.europa.eu/health/ph_overview/co_
operation/healthcare/docs/COM_en.pdf, accessed on
6 July 2008.
49 American Medical Association. New AMA Guidelines
on Medical Tourism. 2008. Available at: http://
www.ama-assn.org/ama1/pub/upload/mm/31/
medicaltourism.pdf, accessed on 23 July 2008.
50 United Nations Economic Commission for Europe.
Convention on Access to Information, Public Participation
in Decision-Making and Access to Justice in
Environmental Matters. Aarhus: UNECE, 1998.
51 Lewis M. Governing Foundation Trusts: A New Era for
Public Accountability. London: Kings Fund, 2005.
52 House of Commons Health Committee. Foundation
Trusts and Monitor. London: House of Commons,
2008.
53 Hogg C. Citizens, Consumers and the NHS: Capturing
Voices. London: Palgrave Macmillan, 2008.
54 House of Commons Health Committee. Patient and
Public Involvement in the NHS. London: House of
Commons, 2008.
55 Department of Health. Health Bill 2009. http://
www.dh.gov.uk/en/Publicationsandstatistics/
Legislation/Actsandbills/DH_093280, accessed on 17
July 2009.
56 Department of Health. Department of Health:
Departmental Report 2008. London: Department of
Health, 2008.
57 NHS Confederation Key Statistics in the NHS. 2008.
Available at: http://www.nhsconfed.org/issues/
about-1857.cfm, accessed on 15 July 2008.
58 Koivusalo M, Tritter J. The Globalisation of Health
Care Reforms: The Impact and Response to
Commercialisation in Different National Contexts.
16th International Sociological Association World
Congress of Sociology, Durban, South Africa, 23–29
July 2006.
59 U.S. Department of Health & Human Services.
HealthReform.Gov. 2009. http://www.healthreform.
gov, accessed on 17 July 2009.
60 Valentine N, Darby C, Bonsel GJ. Which aspects of
non-clinical quality of care are most important?
Results from WHOs general population surveys of
‘‘health systems responsiveness’’ in 41 countries
Social Science and Medicine, 2008; 66: 1939–
1950.
61 Ollila E, Koivusalo M. The World Health Report
2000: the World Health Organization health policy
steering off course – changed values, poor evidence,
and lack of accountability. International Journal of
Health Services, 2002; 32: 503–514.
62 Docteur E, Oxley H. Health Care Systems: Lessons
from the Reform Experience. Paris: OECD ⁄
ELSA ⁄WD ⁄ HEA, 2003.
63 Henderson S, Petersen A (eds). Consuming Health:
The Commodification of Health Care. Routledge:
London and New York, 2002; 3.
64 Krugman P. Blue double cross. The New York Times,
21 May 2009.