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‘Different things at different times’ : wellbeing strategies and processes identified by parents of children who have an intellectual disability or who are autistic, or both
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Griffin, Joanna and Gore, Nick (2023) ‘Different things at different times’ : wellbeing strategies and processes identified by parents of children who have an intellectual disability or who are autistic, or both. Journal of Applied Research in Intellectual Disabilities . doi:10.1111/jar.13098 ISSN 1468-3148. (In Press)
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Research Intellect Disabil - 2023 - Griffin - Different things at different times Wellbeing strategies and processes.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons Attribution Non-commercial No Derivatives 4.0. Download (734Kb) | Preview |
Official URL: https://doi.org/10.1111/jar.13098
Abstract
Background: Most parents of children with an intellectual disability or who are autistic identify positives in their family life and their own wellbeing, in addition to reported mental health challenges. Several models and interventions have been developed in relation to parent carer wellbeing. Few studies have asked parent carers how they support their own wellbeing. Method: Adopting an interpretive phenomenological approach this study utilised semi‐structured interviews. Seventeen parent carers were asked what supported their emotional wellbeing. Template Analysis was applied to develop themes. Results: All participants identified factors that supported their wellbeing. Themes included strategies that countered stress (time for themselves, relaxation, ‘parking’ difficulties) and broader wellbeing strategies (finding meaning life direction, greater understanding of child). An ongoing process of supporting wellbeing by ‘Reorienting and Finding Balance’ appeared central. Conclusions: Self‐identified, multi‐dimensional strategies benefit parents' emotional wellbeing and should be considered in the context of support provided to families.
| Item Type: | Journal Article | ||||||||
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| Subjects: | H Social Sciences > HQ The family. Marriage. Woman R Medicine > RA Public aspects of medicine R Medicine > RC Internal medicine |
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| Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
| SWORD Depositor: | Library Publications Router | ||||||||
| Library of Congress Subject Headings (LCSH): | Children with autism spectrum disorders, Autism, Well-being, Intellectual disability, Mental health, Parenting, Parent and child | ||||||||
| Journal or Publication Title: | Journal of Applied Research in Intellectual Disabilities | ||||||||
| Publisher: | Blackwell Publishing Ltd | ||||||||
| ISSN: | 1468-3148 | ||||||||
| Official Date: | 2023 | ||||||||
| Dates: |
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| DOI: | 10.1111/jar.13098 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | In Press | ||||||||
| Reuse Statement (publisher, data, author rights): | |||||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||||
| Copyright Holders: | © 2023 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. | ||||||||
| Date of first compliant deposit: | 20 April 2023 | ||||||||
| Date of first compliant Open Access: | 20 April 2023 | ||||||||
| Related URLs: |
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