A qualitative study of the health experience of gypsy travellers in the UK with a focus on terminal illness
Jesper, Elouise, Griffiths, Frances and Smith, Len. (2008) A qualitative study of the health experience of gypsy travellers in the UK with a focus on terminal illness. Primary Health Care Research and Development, Vol.9 (No.2). pp. 157-165. ISSN 1463-4236
WRAP_Griffiths_Primary_Healthcare_Research_and_Development_Paper_Jesper_et_al_for_archive.pdf - Requires a PDF viewer such as GSview, Xpdf or Adobe Acrobat Reader
Official URL: http://dx.doi.org/10.1017/S1463423608000613
Aim To understand the experience of terminal care and health care access for Gypsy Travellers, to inform palliative and primary care service provision.
Background Little contemporary research of UK English Romany Gypsy Travellers is available. This ethnic group is often overlooked in ethnic minority health research.
Methods Access to Gypsy Traveller communities was through non-health care channels and required the development of trust through repeated contact over time. English Romany Gypsy Travellers at two Traveller sites participated in face-to-face contacts. Data collection was through field observation and seven semistructured interviews with Gypsy Traveller women who had experience of caring for relatives who were dying. In addition, data were collected over two years through discussion in a members-only Gypsy and Traveller interest e-mail forum.
Findings The culture of Gypsy Travellers is distinct but diverse. Hygiene is important as is discretion and sensitivity to the information requirements of the patient and family. Gypsy Travellers are aware that their mobility (voluntary or enforced) can negatively impact on health care. Home care for the terminally ill is often preferred to hospital care often due to poor understanding of their cultural and personal needs by health care professionals and due to an aversion to ‘bricks and mortar’. Care may be provided by the extended family. Palliative care provision should consider the needs of Gypsy Travellers including respect for their culture and support for caring at home.
|Item Type:||Journal Article|
|Subjects:||R Medicine > R Medicine (General)|
|Divisions:||Faculty of Medicine > Warwick Medical School > Health Sciences
Faculty of Medicine > Warwick Medical School
Faculty of Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH)
|Library of Congress Subject Headings (LCSH):||Palliative treatment -- Great Britain, Romanies -- Medical care, Minorities -- Medical care -- Great Britain|
|Journal or Publication Title:||Primary Health Care Research and Development|
|Publisher:||Cambridge University Press|
|Official Date:||April 2008|
|Page Range:||pp. 157-165|
|Access rights to Published version:||Open Access|
1. Thomson F. Yetholm's Royal Palace: Legacies - UK history local to you http://www.bbc.co.uk/legacies/heritage/scotland/borders/article_1.shtml accessed 02/08/06: BBC, 2005.
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