1. Walther FJ, den Ouden LA, Verloove-Vanhorick SP. Looking
back in time: outcome of a national cohort of very preterm
infants born in the Netherlands in 1983. Early Hum Dev. 2000;
59(3):175–191
2. Saigal S, Stoskopf BL, Streiner DL, Burrows E. Physical growth
and current health status of infants who were of extremely low
birth weight and controls at adolescence. Pediatrics. 2001;
108(2):407–415
3. Hille ET, den Ouden AL, Bauer L, van den Oudenrijn C, Brand
R, Verloove-Vanhorick SP. School performance at nine years of
age in very premature and very low birth weight infants:
perinatal risk factors and predictors at five years of age. J Pediatr.
1994;125(3):426–434
4. Wolke D, Ratschinksy G, Ohrt B, Riegel K. The cognitive outcome
of very preterm infants may be poorer than often
reported: an empirical investigation of how methodological
issues make a big difference. Eur J Pediatr. 1994;153(12):
906–915
5. Wolke D. Psychological development of prematurely born children.
Arch Dis Child. 1998;78(6):567–570
6. Saigal S, Hoult LA, Streiner DL, Stoskopf BL, Rosenbaum PL.
School difficulties at adolescence in a regional cohort of children
who were extremely low birth weight. Pediatrics. 2000;
105(2):325–331
7. Gabrielson J, Stevenson CJ, West CR, Pharaoah POD, Hellstro
¨m A. Large variability in performance IQ associated with
postnatal morbidity and reduced verbal IQ among school-aged
children born preterm. Acta Paediatr. 2002;91(12):1371–1378
8. Bhutta AT, Cleves MA, Casey PH, Cradock MM, Anand KJ.
Cognitive and behavioral outcomes of school-aged children
who were born preterm: a meta-analysis. JAMA. 2002;288(6):
728–737
9. Schothorst PF, van Engeland H. Long-term behavioral sequelae
of prematurity. J Am Acad Child Adolesc Psychiatry. 1996;35(2):
175–182
10. Hille ETM, den Ouden AL, Saigal S, et al. Behavioural problems
in children who weigh 1000 g or less at birth in four
countries. Lancet. 2001;357(9269):1641–1643
11. Saigal S, Pinelli J, Hoult L, Kim MM, Boyle M. Psychopathology
and social competencies of adolescents who were extremely
low birth weight. Pediatrics. 2003;111(5):969–975
12. Marlow N, Wolke D, Bracewell MA, Samara M. Neurologic and
developmental disability at 6 years of age after extremely preterm
birth. N Engl J Med. 2005;352(1):9–19
13. Wolke D. The preterm responses to the environment: long
term effects? In: Cockburn F, ed. Advances in Perinatal Medicine.
Carnforth, England: Parthenon Publishing; 1997:305–314
14. Bjerager M, Steensberg J, Greisen G. Quality of life among
young adults born with very low birthweight. Acta Paediatr.
1995;84(12):1339–1343
15. Saigal S, Feeny D, Rosenbaum P, Furlong W, Burrows E,
Stoskopf B. Self-perceived health status and health-related
quality of life of extremely low-birth-weight infants at adolescence.
JAMA. 1996;276(6):453–459
16. Saigal S, Stoskopf BL, Feeny D, et al. Differences in preferences
for neonatal outcomes among health care professionals, parents
and adolescents. JAMA. 1999;281(21):1991–1997
17. Lorenz JM, Paneth N, Jetton JR, den Ouden LA, Tyson JE,
Comparison of management strategies for extreme prematurity
in New Jersey and the Netherlands: outcomes and resource
expenditures. Pediatrics. 2001;108(6):1269–1274
18. Clark RH, Gerstmann DR, Jobe AH, Moffit ST, Slutsky AS,
Yoder BA. Lung injury in neonates: causes, strategies of prevention,
and long-term consequences. J Pediatr. 2001;139(4):
478–486
19. Volpe JJ. Neurobiology of periventricular leukomalacia in the
premature infant. Pediatr Res. 2001;50(5):553–562
20. Jobe AH. Predictors of outcomes in preterm infants: which
ones and when? J Pediatr. 2001;138(2):153–156
21. Saigal S, den Ouden L, Wolke D, et al. School-age outcomes in
children who were extremely low birth weight from four international
population-based cohorts. Pediatrics. 2003;112(4):
943–950
22. Schneider W, Wolke D, Schlagmuller M, Meyer R. Pathways to
school achievement in very preterm and full term children. Eur
J Psychol Educ. 2004;19(4):385–406
23. Saigal S, Stoskopf B, Hoult L, Paneth N, Goddeeris J. Selfperceived
health-related quality of life of former extremely low
birth weight infants at young adulthood. Pediatrics. 2006;
118(3):1140–1148
24. Saigal S, Stoskopf B, Boyle M, et al. Comparison of current
health, functional limitations and health care use of young
adults who were born with extremely low birth weight and
normal birth weight. Pediatrics. 2007;119(3). Available at:
www.pediatrics.org/cgi/content/full/119/3/e562
25. Hille ETM, Weisglas-Kuperus N, van Goudoever JB, et al.
Functional outcomes and participation in young adulthood for
very preterm and very low birth weight infants: the Dutch
Project on Preterm and Small for Gestational Age Infants at 19
years of age. Pediatrics. 2007;120(3). Available at: www.
pediatrics.org/cgi/content/full/120/3/e587
26. Furlong W, Feeny D, Torrance GW, et al. Multiplicative Multiattribute
Utility Function for the Health Utilities Index Mark 3
(HUI3) System: A Technical Report. Hamilton, Canada: McMaster
University Centre for Health Economics and Policy Analysis;
1998
27. Verrips GHW, Stuifbergen MC, den Ouden LA, et al. Measuring
health status using the Health Utility Index: agreement
between raters and between modalities of administration.
J Clin Epidemiol. 2001;54(5):475–481
28. Verloove-Vanhorick SP, Verwey RA, Brand R, Gravenhorst JB,
Keirse MJNC, Ruys JH. Neonatal mortality risk in relation to
gestational age and birthweight: results of a national survey of
preterm and very-low-birthweight infants in the Netherlands.
Lancet. 1986;1(8472):55–57
29. Paneth N, Qiu H, Rosenbaum P, et al. Reliability of classification
of cerebral palsy in low-birthweight children in four countries.
Dev Med Child Neurol. 2003;45(9):628–633
30. Horsman J, Furlong W, Feeny D, Torrance G. The Health
Utilities Index (HUI): concepts, measurement properties and
applications. Health Qual Life Outcomes. 2003;1:54
31. Wolke D, So¨hne B, Ort B, Riegel K. Folllow-up of preterm
children: important to document dropouts. Lancet. 1995;
345(8947):447
32. Hille ETM, den Ouden AL, Stuifbergen MC, et al. Is attrition
bias a problem in neonatal follow-up? Early Hum Dev. 2005;
81(11):901–908
33. Saigal S, Stoskopf B, Streiner D, et al. Transition of extremely
low-birth-weight infants from adolescence to young
adulthood: comparison with normal birth-weight controls.
JAMA. 2006;295(6):667–675
34. Gross SJ, Mettelman BB, Dye TD, Slagle TA. Impact of family
structure and stability on academic outcome in preterm children
at 10 years of age. J Pediatr. 2001;138(2):169–175
35. Wolke D, Meyer R. Cognitive status, language attainment and
prereading skills of 6-year-old very preterm children and their
peers: the Bavarian Longitudinal Study. Dev Med Child Neurol.
1999;41(2):94–109
36. UNICEF Innocenti Research Centre. Innocenti Report Card 7:
Child Poverty in Perspective: An Overview of Child Well-being in Rich
Countries. Florence, Italy: UNICEF Innocenti Research Centre;
2007
PEDIATRICS