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UKCP: a collaborative network of cerebral palsy registers in the United Kingdom
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Surman, Geraldine, Bonnellie, Sandra, Chalmers, J., Colver, Allan, Dolk, Helen, Hemming, Karla, King, Andy, Kurinczuk, Jennifer J., Parkes, Jackie and Platt, Mary J. (2006) UKCP: a collaborative network of cerebral palsy registers in the United Kingdom. Journal of Public Health, 28 (2). pp. 148-156. doi:10.1093/pubmed/fdi087
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Official URL: http://dx.doi.org/10.1093/pubmed/fdi087
Abstract
Cerebral palsy (CP) is a relatively rare condition with enormous social and financial impact. Information about CP is not routinely collected in the United Kingdom. We have pooled non-identifiable data from the five currently active UK CP registers to form the UKCP database: birth years 1960-1997. This article describes the rationale behind this collaboration and the creation of the database. Data about 6910 children with CP are currently held. The mean annual prevalence rate was 2.0 per 1000 live births for birth years 1986-1996. Where type is known, 91 per cent have spastic CP. Where data are available, nearly one-third of children have severely impaired lower limb function, and nearly a quarter have severely impaired upper limb function. As well as describing the range and complexity of motor and associated impairments, the pooled data from the UKCP database provide a platform for studies of aetiology, long-term outcomes, participation and service needs. The UKCP database is an important national resource for the surveillance of CP and the study of its epidemiology in the United Kingdom.
| Item Type: | Journal Article | ||||||
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| Subjects: | R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine | ||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Science > Statistics Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Journal or Publication Title: | Journal of Public Health | ||||||
| Publisher: | Oxford University Press | ||||||
| ISSN: | 1741-3842 | ||||||
| Official Date: | 26 March 2006 | ||||||
| Dates: |
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| Volume: | 28 | ||||||
| Number: | 2 | ||||||
| Number of Pages: | 9 | ||||||
| Page Range: | pp. 148-156 | ||||||
| DOI: | 10.1093/pubmed/fdi087 | ||||||
| Status: | Peer Reviewed | ||||||
| Publication Status: | Published | ||||||
| Access rights to Published version: | Restricted or Subscription Access |
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