Iqbal, Gulnaz, Gumber, Anil, Johnson, Mark R. D., Szczepura, Ala, Wilson, Sue and Dunn, Janet A. (2009) Improving ethnicity data collection for health statistics in the UK. Diversity in Health and Care, Vol.6 (No.4). pp. 267-285.

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Abstract

Abstract:
There is an identified need for the collection of ethnicity data in the healthcare setting. Accurate data on ethnicity are essential for informing policy makers, funders and public health experts about the incidence, prevalence and outcomes of specific conditions in population subgroups. There is emerging evidence that some ethnic groups are associated with an increased incidence of certain cancers, and disparities in access to services have been documented. Government initiatives are in place to collect ethnicity data in the healthcare setting, but the accuracy of the data needs to be validated.
Cancer Research UK commissioned the Cancer Ethnicity (CanEth) project to gather robust evidence and identify solutions to improve the collection of ethnicity data for cancer. The project set out to review current literature focusing on methods, interventions and barriers addressing the collection of ethnicity data.
The review identified a paucity of published evidence on ethnicity data collection. Many clinical articles used ethnicity data, but few discussed the methodology of data collection. In general, however, self-reported ethnicity is recognised as the best method of data collection, and is preferable to observer assessment. Training is needed to raise awareness of the importance of ethnicity data and its use to facilitate the reduction of inequalities.

Item Type:	Journal Article
Subjects:	R Medicine > R Medicine (General) R Medicine > RA Public aspects of medicine
Divisions:	Faculty of Medicine > Warwick Medical School > Health Sciences Faculty of Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH):	Medical statistics -- Methodology, Ethnicity -- Statistics, Health facilities -- Statistical methods -- Evaluation, Cancer -- Statistical methods -- Evaluation
Journal or Publication Title:	Diversity in Health and Care
Publisher:	Radcliffe Publishing Ltd.
ISSN:	1759-1422
Official Date:	December 2009
Dates:	Date Event December 2009 Published
Volume:	Vol.6
Number:	No.4
Number of Pages:	19
Page Range:	pp. 267-285
Status:	Peer Reviewed
Publication Status:	Published
Access rights to Published version:	Restricted or Subscription Access
Funder:	Cancer Research UK (CRUK)

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