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Patients' experience of receiving GSF-led primary palliative care
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Kelt, Sarah, Munday, Dan and Dale, Jeremy (2008) Patients' experience of receiving GSF-led primary palliative care. End of Life Care, Vol.2 (No.4). pp. 47-53. ISSN 1754-1069.
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Official URL: http://endoflifejournal.stchristophers.org.uk/clin...
Abstract
Background: Most end-of-life care is provided in the community where primary healthcare teams take a leading role in its co-ordination and delivery. The Gold Standards Framework (GSF) aims to facilitate high-quality, community palliative care. Little research has explored patient experience of receiving care from practices involved in the GSF.
Aims: To explore the views of terminally ill patients and their carers on the care received from practices participating in the GSF. Methods: Semistructured interviews were undertaken with patients and carers recruited through general practice. Interviews were transcribed and analysed using thematic content analysis.
Results: This small group of patients and carers reported generally positive experiences. Care that was co-ordinated and accessible was valued, as was feeling well supported. Difficulties arose from either a breakdown in the organisation of care or problems in accessing it.
Conclusion: For this selected group, the experience of primary palliative care was generally good. When patients felt that their needs were met, especially when healthcare professionals provided a personalised service, they reported this as a positive experience. Problems, when they did occur, caused significant anxiety. Some of the patients’ priorities reflected the aims of the GSF. Further research in this area is needed to assess the impact of the GSF on a broader range of terminally ill patients.
| Item Type: | Journal Article | ||||
|---|---|---|---|---|---|
| Subjects: | R Medicine > R Medicine (General) | ||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Palliative treatment -- Evaluation, Primary care (Medicine) -- Evaluation, Terminal care -- Evaluation, Patient satisfaction | ||||
| Journal or Publication Title: | End of Life Care | ||||
| Publisher: | Healthcomm U K | ||||
| ISSN: | 1754-1069 | ||||
| Official Date: | 2008 | ||||
| Dates: |
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| Volume: | Vol.2 | ||||
| Number: | No.4 | ||||
| Page Range: | pp. 47-53 | ||||
| Status: | Peer Reviewed | ||||
| Publication Status: | Published | ||||
| Access rights to Published version: | Restricted or Subscription Access |
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