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Developing the evidence base of patient and public involvement in health and social care research : the case for measuring impact
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Staniszewska, Sophie, Adebajo, Ade, Barber, Rosemary, Beresford, Peter, Brady, Louca-Mai, Brett, Jo, Elliott, J., Evans, David, Haywood, Kirstie L., Jones, D., Mockford, Carole, Nettle, Mary, Rose, Diana and Williamson, Tracey (2011) Developing the evidence base of patient and public involvement in health and social care research : the case for measuring impact. International Journal of Consumer Studies, Volume 35 (Number 6). pp. 628-632. doi:10.1111/j.1470-6431.2011.01020.x ISSN 14706423.
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Official URL: http://dx.doi.org/10.1111/j.1470-6431.2011.01020.x
Abstract
While patient and public involvement (PPI) in health and social care research has progressed successfully in the last decade, a range of difficulties with the evidence base exist, including poor understanding of the concept of impact, limited theorization and an absence of quantitative impact measurement. In this paper, we argue that a paradigm change towards robust measurement of the impact of involvement in research is needed to complement qualitative explorations. We argue that service users should be collaboratively involved in the conceptualization, theorization and development of instruments to measure PPI impact. We consider the key advantages measurement would bring in strengthening the PPI evidence base through a greater understanding of what works, for whom, in what circumstances and why.
| Item Type: | Journal Article | ||||
|---|---|---|---|---|---|
| Subjects: | H Social Sciences > HV Social pathology. Social and public welfare R Medicine > R Medicine (General) R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine |
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| Divisions: | Faculty of Social Sciences > School of Health and Social Studies | ||||
| Library of Congress Subject Headings (LCSH): | Patient participation, Public health, Medical policy -- Citizen participation, Health planning, Social service -- Research -- Great Britain -- Citizen participation, Medical care -- Research -- Great Britain -- Citizen participation | ||||
| Journal or Publication Title: | International Journal of Consumer Studies | ||||
| Publisher: | John Wiley & Sons Ltd. | ||||
| ISSN: | 14706423 | ||||
| Official Date: | November 2011 | ||||
| Dates: |
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| Volume: | Volume 35 | ||||
| Number: | Number 6 | ||||
| Page Range: | pp. 628-632 | ||||
| DOI: | 10.1111/j.1470-6431.2011.01020.x | ||||
| Status: | Peer Reviewed | ||||
| Publication Status: | Published | ||||
| Access rights to Published version: | Restricted or Subscription Access |
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