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Developing the evidence base of patient and public involvement in health and social care research : the case for measuring impact

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Staniszewska, Sophie, Adebajo, Ade, Barber, Rosemary, Beresford, Peter, Brady, Louca-Mai, Brett, Jo, Elliott, J., Evans, David, Haywood, Kirstie L., Jones, D., Mockford, Carole, Nettle, Mary, Rose, Diana and Williamson, Tracey (2011) Developing the evidence base of patient and public involvement in health and social care research : the case for measuring impact. International Journal of Consumer Studies, Volume 35 (Number 6). pp. 628-632. doi:10.1111/j.1470-6431.2011.01020.x ISSN 14706423.

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Official URL: http://dx.doi.org/10.1111/j.1470-6431.2011.01020.x

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Abstract

While patient and public involvement (PPI) in health and social care research has progressed successfully in the last decade, a range of difficulties with the evidence base exist, including poor understanding of the concept of impact, limited theorization and an absence of quantitative impact measurement. In this paper, we argue that a paradigm change towards robust measurement of the impact of involvement in research is needed to complement qualitative explorations. We argue that service users should be collaboratively involved in the conceptualization, theorization and development of instruments to measure PPI impact. We consider the key advantages measurement would bring in strengthening the PPI evidence base through a greater understanding of what works, for whom, in what circumstances and why.

Item Type: Journal Article
Subjects: H Social Sciences > HV Social pathology. Social and public welfare
R Medicine > R Medicine (General)
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Divisions: Faculty of Social Sciences > School of Health and Social Studies
Library of Congress Subject Headings (LCSH): Patient participation, Public health, Medical policy -- Citizen participation, Health planning, Social service -- Research -- Great Britain -- Citizen participation, Medical care -- Research -- Great Britain -- Citizen participation
Journal or Publication Title: International Journal of Consumer Studies
Publisher: John Wiley & Sons Ltd.
ISSN: 14706423
Official Date: November 2011
Dates:
DateEvent
November 2011Published
Volume: Volume 35
Number: Number 6
Page Range: pp. 628-632
DOI: 10.1111/j.1470-6431.2011.01020.x
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access

Data sourced from Thomson Reuters' Web of Knowledge

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